What departments does The Ehlers-Danlos Society have?

The Ehlers-Danlos Society has employees across 6 departments including Entrepreneurship, Operations, Finance, Information Technology, Marketing.

What is the largest department at The Ehlers-Danlos Society?

The largest department at The Ehlers-Danlos Society is Information Technology with 2 employees.

Where are The Ehlers-Danlos Society employees located globally?

The Ehlers-Danlos Society has employees across 3 continents and 6 countries including United Kingdom Of Great Britain And Northern Ireland, Netherlands, Belgium, United States Of America, Canada.

How has The Ehlers-Danlos Society's team size changed over time?

The Ehlers-Danlos Society's team has grown from approximately 48 to 52 employees based on available data.

The Ehlers-Danlos Society Employee Directory

Q: Who are The Ehlers-Danlos Society's key employees and leadership?

The Ehlers-Danlos Society's key employees include: President And Ceo: L. B., Chief Operations Officer: S. W., Chief Medical And Scientific Officer: A. H., Chief Financial Officer: R. R..

Non-profit OrganizationsNew York, United States51-200 Employees

The Ehlers-Danlos Society is a non-profit organization based in New York, focused on advancing research and education related to Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD). Its work centers on supporting the development of effective and equitable therapies and collaborating across stakeholders to improve the lives of individuals affected by these conditions. The organization serves a global community of people with EDS and HSD, researchers, healthcare providers, and partners seeking to enhance care delivery and understanding of these rare and often underdiagnosed disorders. In addition to its research and education efforts, the Society engages in partnerships and initiatives—such as collaboration with academic and clinical institutions to develop models of care and the management of legacy giving—reflecting its aim to influence both practice and policy in the field. The Society operates within the non-profit sector and emphasizes visioning a world where each person receives timely, appropriate treatment and support tailored to their specific needs.

The Ehlers-Danlos Society Global Highlights

North America
30

United States Of America
28
Canada
2

Europe
26

United Kingdom Of Great Britain And Northern Ireland
24
Netherlands
1
Belgium
1

Oceania
9

Australia
9

The Ehlers-Danlos Society's Leadership

S. W.
Chief Operations Officer
Mobile Phone
Email
A. H.
Chief Medical And Scientific Officer
Mobile Phone
Email
R. R.
Chief Financial Officer
Mobile Phone
Email
L. B.
President And Ceo
Mobile Phone
Email
A. H. M.
Non Executive Director
Mobile Phone
Email
E. S.
Event Director
Mobile Phone
Email
R. B.
Creative And Digital Communications Director
Mobile Phone
Email
E. S.
Marketing Director
Mobile Phone
Email

The Ehlers-Danlos Society Employee Metrics

100%

50%

0%

2026

2025

Education
Arts & Design
Business
Information Technology
Program & Project Management
Other
Administrative

Contact profiles from The Ehlers-Danlos Society

Name

Title

Contact

Location

Last Update

L. B.
President And Ceo
Mobile Phone
Email
United Kingdom
May 24, 2026
S. W.
Chief Operations Officer
Mobile Phone
Email
United KingdomUnited Kingdom
Apr 16, 2026
A. H.
Chief Medical And Scientific Officer
Mobile Phone
Email
United Kingdom
Jun 26, 2026
R. R.
Chief Financial Officer
Mobile Phone
Email
Aug 11, 2023
A. H. M.
Non Executive Director
Mobile Phone
Email
United Kingdom
Jun 27, 2026
E. S.
Event Director
Mobile Phone
Email
United Kingdom
Jun 24, 2026
R. B.
Creative And Digital Communications Director
Mobile Phone
Email
United Kingdom
Jul 08, 2026
E. S.
Marketing Director
Mobile Phone
Email
Oct 22, 2024
B. C.
Co-Lead - Australian Eds & Hsd Network Of Excellence
Mobile Phone
Email
AustraliaVictoria
Dec 23, 2025
J. H.
Design And Communications Manager
Mobile Phone
Email
UNITED KINGDOMLondon
Oct 31, 2023

Frequently Asked Questions

What is The Ehlers-Danlos Society known for?

The Ehlers-Danlos Society was founded in 1985 operates in the Non-profit Organizations industry. Explore The Ehlers-Danlos Society's company overview page for more information.

What is The Ehlers-Danlos Society's most common email format?

The Ehlers-Danlos Society employees' email format typically follows the pattern of . Trying to find reliable and up-to-date employee contact data? Find more The Ehlers-Danlos Society email formats with LeadIQ.

How many employees does The Ehlers-Danlos Society have currently?

The Ehlers-Danlos Society has approximately 64 employees as of August 2026. These team members are located across 3 continents, including North AmericaEuropeOceania.

Who are The Ehlers-Danlos Society's key employees and leadership?

As of August 2026, The Ehlers-Danlos Society's key employees include:

Chief Operations Officer: S. W.
Chief Medical And Scientific Officer: A. H.
Chief Financial Officer: R. R.
President And Ceo: L. B.
Non Executive Director: A. H. M.

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The Ehlers-Danlos Society Employee Directory

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