Insights

Strategic Research Partnerships The Ehlers-Danlos Society's collaborations with leading institutions like Harvard Medical School and Brigham & Women's Hospital indicate a strong focus on advancing medical research. Opportunities exist for companies offering research tools, medical innovations, or diagnostic solutions to partner or provide support for ongoing and future studies.

Digital Engagement Tools The organization utilizes various online platforms and technologies such as Facebook Pixel, WPBakery, and The Events Calendar, suggesting an active digital presence. Vendors providing digital marketing, event management, or community engagement solutions could find a receptive environment for their offerings.

Patient Registry Initiatives With recent launches of global registries like DICE, EDS, and HSD, the society emphasizes data collection and patient participation in research. Companies specializing in data management, medical registry software, or analytics could explore opportunities to collaborate or provide technology solutions.

Funding and Support Opportunities While specific funding details are not provided, the organization's revenue range suggests they may seek partnerships with corporations for grants, sponsorships, or philanthropic support related to medical research and patient-centered initiatives.

Growing Community Engagement The society's active campaigns such as #EnoughIsEnough and outreach efforts indicate a dedicated, engaged community and awareness initiatives. Companies focused on patient advocacy, awareness campaigns, and community engagement can find potential for sponsorship or partnership in expanding outreach efforts.

Similar companies to The Ehlers-Danlos Society

The Ehlers-Danlos Society Tech Stack

The Ehlers-Danlos Society uses 8 technology products and services including Facebook Pixel, Unpkg, jQuery Migrate, and more. Explore The Ehlers-Danlos Society's tech stack below.

  • Facebook Pixel
    Analytics
  • Unpkg
    Content Delivery Network
  • jQuery Migrate
    Javascript Libraries
  • OWL Carousel
    Javascript Libraries
  • Lightbox
    Javascript Libraries
  • WPBakery
    Page Builders
  • NextGEN Gallery
    Photo Galleries
  • The Events Calendar
    Web Platform Extensions

Media & News

The Ehlers-Danlos Society's Email Address Formats

The Ehlers-Danlos Society uses at least 1 format(s):
The Ehlers-Danlos Society Email FormatsExamplePercentage
First.Last@ehlers-danlos.comJohn.Doe@ehlers-danlos.com
48%
Last@ehlers-danlos.comDoe@ehlers-danlos.com
3%
Last.First@ehlers-danlos.comDoe.John@ehlers-danlos.com
1%
First.Last@ehlers-danlos.comJohn.Doe@ehlers-danlos.com
48%

Frequently Asked Questions

Where is The Ehlers-Danlos Society's headquarters located?

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The Ehlers-Danlos Society's main headquarters is located at 447 Broadway #670 2nd Floor New York, New York 10013 United States. The company has employees across 3 continents, including North AmericaEuropeOceania.

What is The Ehlers-Danlos Society's official website and social media links?

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The Ehlers-Danlos Society's official website is ehlers-danlos.com and has social profiles on LinkedInCrunchbase.

What is The Ehlers-Danlos Society's NAICS code?

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The Ehlers-Danlos Society's NAICS code is 813 - Religious, Grantmaking, Civic, Professional, and Similar Organizations.

How many employees does The Ehlers-Danlos Society have currently?

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As of March 2026, The Ehlers-Danlos Society has approximately 59 employees across 3 continents, including North AmericaEuropeOceania. Key team members include Chief Operations Officer: S. W.Chief Financial Officer: R. R.President And Ceo: L. B.. Explore The Ehlers-Danlos Society's employee directory with LeadIQ.

What industry does The Ehlers-Danlos Society belong to?

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The Ehlers-Danlos Society operates in the Non-profit Organizations industry.

What technology does The Ehlers-Danlos Society use?

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The Ehlers-Danlos Society's tech stack includes Facebook PixelUnpkgjQuery MigrateOWL CarouselLightboxWPBakeryNextGEN GalleryThe Events Calendar.

What is The Ehlers-Danlos Society's email format?

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The Ehlers-Danlos Society's email format typically follows the pattern of First.Last@ehlers-danlos.com. Find more The Ehlers-Danlos Society email formats with LeadIQ.

When was The Ehlers-Danlos Society founded?

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The Ehlers-Danlos Society was founded in 1985.

The Ehlers-Danlos Society

Non-profit OrganizationsNew York, United States51-200 Employees

The Ehlers-Danlos Society is a global organization dedicated to advancing and accelerating research and education in Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD). We support the development of effective and equitable EDS and HSD therapies and work collaboratively to improve the lives of individuals affected by EDS and HSD.

Our Vision
To create a world in which each person living with the Ehlers-Danlos syndromes and hypermobility spectrum disorders has the right treatment and care at the right time for their specific needs.

Section iconCompany Overview

Headquarters
447 Broadway #670 2nd Floor New York, New York 10013 United States
NAICS Code
813 - Religious, Grantmaking, Civic, Professional, and Similar Organizations
Founded
1985
Employees
51-200

Section iconFunding & Financials

  • $10M$25M

    The Ehlers-Danlos Society's revenue is estimated to be in the range of $10M$25M

Section iconFunding & Financials

  • $10M$25M

    The Ehlers-Danlos Society's revenue is estimated to be in the range of $10M$25M

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