Insights

Strategic Partnerships The organization actively pursues collaborations with leading healthcare and academic institutions (Harvard Medical School affiliates, Brigham and Women's Hospital, and global primary care networks) to develop models of care for EDS and HSD, indicating opportunities to offer research tools, data partnerships, and grant-driven tech solutions.

Digital & Data Enablement Maintain an active tech stack and data initiatives (global registry, DICE, surveys) suggesting receptiveness to digital engagement platforms, data collection solutions, patient-reported outcomes tools, and secure data integration for research and fundraising programs.

Philanthropy & Legacy Recent collaboration with LifeLegacy for legacy and planned giving indicates openness to donor CRM, donor segmentation, and lifecycle marketing services that can boost long-term funding and stewardship capabilities.

Awareness & Campaigns Past and ongoing awareness campaigns (EnoughIsEnough) show a channel for awareness-driven fundraising, sponsorships, and cause-marketing partnerships with aligned brands seeking social impact engagement.

Scale & Impact Revenue range and multi-year research initiatives signal potential for scalable solutions in grant management, program analytics, and impact reporting software tailored to nonprofit biomedical research organizations.

Similar companies to The Ehlers-Danlos Society

The Ehlers-Danlos Society Tech Stack

The Ehlers-Danlos Society uses 8 technology products and services including Moat, html5media, OWL Carousel, and more. Explore The Ehlers-Danlos Society's tech stack below.

  • Moat
    Analytics
  • html5media
    Audio, Video, Graphics
  • OWL Carousel
    Javascript Libraries
  • Slick
    Javascript Libraries
  • LinkedIn
    Online Community Software
  • WPBakery
    Page Builders
  • Piwik PRO Core
    Web Analytics
  • WooCommerce Stripe Payment Gateway
    Web Platform Extensions

Media & News

The Ehlers-Danlos Society's Email Address Formats

The Ehlers-Danlos Society uses at least 1 format(s):
The Ehlers-Danlos Society Email FormatsExamplePercentage
First.Last@ehlers-danlos.comJohn.Doe@ehlers-danlos.com
92%
Last@ehlers-danlos.comDoe@ehlers-danlos.com
5%
Last.First@ehlers-danlos.comDoe.John@ehlers-danlos.com
3%

Frequently Asked Questions

What is The Ehlers-Danlos Society's official website and social media links?

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The Ehlers-Danlos Society's official website is ehlers-danlos.com and has social profiles on LinkedInCrunchbase.

How much revenue does The Ehlers-Danlos Society generate?

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As of August 2026, The Ehlers-Danlos Society's annual revenue is estimated to be $10M - $25M.

What is The Ehlers-Danlos Society's NAICS code?

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The Ehlers-Danlos Society's NAICS code is 813 - Religious, Grantmaking, Civic, Professional, and Similar Organizations.

How many employees does The Ehlers-Danlos Society have currently?

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As of August 2026, The Ehlers-Danlos Society has approximately 64 employees across 3 continents, including North AmericaEuropeOceania. Key team members include Chief Operations Officer: S. W.Chief Medical And Scientific Officer: A. H.Chief Financial Officer: R. R.. Explore The Ehlers-Danlos Society's employee directory with LeadIQ.

What industry does The Ehlers-Danlos Society belong to?

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The Ehlers-Danlos Society operates in the Non-profit Organizations industry.

What technology does The Ehlers-Danlos Society use?

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The Ehlers-Danlos Society's tech stack includes Moathtml5mediaOWL CarouselSlickLinkedInWPBakeryPiwik PRO CoreWooCommerce Stripe Payment Gateway.

What is The Ehlers-Danlos Society's email format?

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The Ehlers-Danlos Society's email format typically follows the pattern of First.Last@ehlers-danlos.com. Find more The Ehlers-Danlos Society email formats with LeadIQ.

How much funding has The Ehlers-Danlos Society raised to date?

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As of August 2026, The Ehlers-Danlos Society has raised $6.7M in funding. The last funding round occurred on Dec 20, 2023 for $6.7M.

When was The Ehlers-Danlos Society founded?

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The Ehlers-Danlos Society was founded in 1985.
The Ehlers-Danlos Society logo

The Ehlers-Danlos Society

Non-profit OrganizationsNew York, United States51-200 Employees

The Ehlers-Danlos Society is a non-profit organization based in New York, focused on advancing research and education related to Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD). Its work centers on supporting the development of effective and equitable therapies and collaborating across stakeholders to improve the lives of individuals affected by these conditions. The organization serves a global community of people with EDS and HSD, researchers, healthcare providers, and partners seeking to enhance care delivery and understanding of these rare and often underdiagnosed disorders. In addition to its research and education efforts, the Society engages in partnerships and initiatives—such as collaboration with academic and clinical institutions to develop models of care and the management of legacy giving—reflecting its aim to influence both practice and policy in the field. The Society operates within the non-profit sector and emphasizes visioning a world where each person receives timely, appropriate treatment and support tailored to their specific needs.

Section iconCompany Overview

NAICS Code
813 - Religious, Grantmaking, Civic, Professional, and Similar Organizations
Founded
1985
Employees
51-200

Section iconFunding & Financials

  • $6.7M

    The Ehlers-Danlos Society has raised a total of $6.7M of funding over 1 rounds. Their latest funding round was raised on Dec 20, 2023 in the amount of $6.7Mas a grant.

  • $10M - $25M

    The Ehlers-Danlos Society's revenue is estimated to be in the range of $10M - $25M

Section iconFunding & Financials

  • $6.7M

    The Ehlers-Danlos Society has raised a total of $6.7M of funding over 1 rounds. Their latest funding round was raised on Dec 20, 2023 in the amount of $6.7Mas a grant.

  • $10M - $25M

    The Ehlers-Danlos Society's revenue is estimated to be in the range of $10M - $25M

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