Insights

Strategic Partnerships Global Genes has a history of corporate-nonprofit collaborations (RARE-X, RSZ TNC, Boston Children’s Hospital, Admedicum) and recently expanded with Citizen Health. This indicates a receptive environment for contracted collaboration, data-sharing initiatives, and co-branded programs that can be explored for sponsorships, joint ventures, and technology-enabled advocacy platforms.

Technology Backbone The organization relies on a modern tech stack (HubSpot, Salesforce, WordPress, monday.com, New Relic) to manage CRM, marketing, and operations. This suggests sales opportunities around integrated marketing automation, donor/member lifecycle solutions, analytics dashboards, and custom integrations that enhance efficiency and impact reporting.

RARE-X Focus Global Genes merged with RARE-X and runs the RARE-X Vision Consortium, highlighting a strong demand for tools, infrastructure, and data platforms that accelerate rare disease research and patient advocacy. Potential sales avenues include data collaboration platforms, patient registries, and tools that enable patient-centric research workflows.

Funding Scale With revenue in the mid-range and a notable funding line, the organization is positioned for scalable program investments. This presents opportunities for grant management solutions, programmatic software, sponsorship packages, and professional services to optimize fundraising campaigns and impact measurement.

Leadership Visibility Leadership recognition (CEO honored as Fierce 50) and active engagement in high-profile events (Rare Drug Development Symposium) indicate a favorable network and influence within the rare disease ecosystem. This can be leveraged for executive-led strategic partnerships, keynote opportunities, and targeted outreach to peak-level collaborators and donors.

Global Genes Tech Stack

Global Genes uses 8 technology products and services including HubSpot Analytics, WordPress, Salesforce, and more. Explore Global Genes's tech stack below.

Media & News

Global Genes's Email Address Formats

Global Genes uses at least 4 email formats:
Global Genes Email FormatsExamplePercentage
FirstL@globalgenes.orgJohnD@globalgenes.org
73%
First.Last@globalgenes.orgJohn.Doe@globalgenes.org
12%
Last@globalgenes.orgDoe@globalgenes.org
9%
FirstLast@globalgenes.orgJohnDoe@globalgenes.org
6%

Frequently Asked Questions

What is Global Genes's phone number?

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You can contact Global Genes's main corporate office by phone at . For more prospecting data, LeadIQ has access to up-to-date and accurate contact information within our platform. Find, capture, and sync contact data to your CRM and sales tools in one click.

What is Global Genes's official website and social media links?

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Global Genes's official website is globalgenes.org and has social profiles on LinkedIn and Crunchbase.

How much revenue does Global Genes generate?

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As of October 2026, Global Genes's annual revenue is estimated to be $25M - $50M.

What is Global Genes's SIC code and NAICS code?

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Global Genes's SIC code is 8641 - Civic, Social, and Fraternal Associations and NAICS code is 813 - Religious, Grantmaking, Civic, Professional, and Similar Organizations.

How many employees does Global Genes have currently?

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As of October 2026, Global Genes has approximately 42 employees across 4 continents, including North America, Africa and Europe. Key team members include Head Of Nonprofit Development: R. B., Founder And Board Member: N. B. and Sr Director, Community Engagement & Communications: L. A. Explore Global Genes's employee directory with LeadIQ.

What industry does Global Genes belong to?

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Global Genes operates in the Non-profit Organizations industry.

What technology does Global Genes use?

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Global Genes's tech stack includes HubSpot Analytics, WordPress, Salesforce, WooCommerce, monday.com, New Relic, Vimeo and Zoom.

What is Global Genes's email format?

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Global Genes's email format typically follows the pattern of FirstL@globalgenes.org. Find more Global Genes email formats with LeadIQ.

How much funding has Global Genes raised to date?

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As of October 2026, Global Genes has raised $1.5M in funding. The last funding round occurred on Feb 18, 2025 for $1.5M.

When was Global Genes founded?

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Global Genes was founded in 2009.
Global Genes logo

Global Genes

Non-profit OrganizationsDistrict of Columbia, United States11-50 Employees

Global Genes is a nonprofit organization based in Washington, DC, focused on rare disease advocacy and patient support. The organization formed from a December 2022 merger with RARE-X, unifying efforts to empower the next generation of rare-disease advocates. Through its initiatives and services, it helps patients, families, and care partners access tools and participate in research, drawing on the RARE-X data platform and related support structures.

Its primary audience includes patients, families, advocacy groups, and healthcare partners seeking to improve care and advance research for rare conditions. It addresses long-standing gaps in access to tools, technology, and infrastructure that can enable advocacy, data collection, and collaboration. In September 2024, Global Genes launched the RARE Navigator Program as part of its RARE Concierge Patient Services, illustrating continued expansion of direct support for newly diagnosed patients and their families.

Section iconCompany Overview

Phone number
SIC Code
8641 - Civic, Social, and Fraternal Associations
NAICS Code
813 - Religious, Grantmaking, Civic, Professional, and Similar Organizations
Founded
2009
Employees
11-50

Section iconFunding & Financials

  • $1.5M

    Global Genes has raised a total of $1.5M of funding over 1 rounds. Their latest funding round was raised on Feb 18, 2025 in the amount of $1.5M as a Grant.

  • $25M - $50M

    Global Genes's revenue is estimated to be in the range of $25M - $50M

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