Insights

Strategic partnerships BBDF has a track record of initiating and formalizing sponsorship and collaboration agreements with organizations like Care Beyond Diagnosis and industry partners around Batten disease awareness. This indicates receptiveness to co-funded research, joint programs, and sponsorship-led initiatives that could be explored for expanded research funding, awareness campaigns, or clinical guideline projects.

Philanthropic funding With revenue under one million and a strong focus on accelerating research for a cure, BBDF could be a fit for targeted fundraising campaigns, donor-driven grant programs, and corporate sponsorship opportunities tied to CLN3 disease research milestones and patient impact storytelling.

Clinical collaboration BBDF’s involvement in establishing internationally validated clinical management guidelines for CLN3 disease suggests opportunities to offer data analytics, registries, or outcomes tracking services, as well as software platforms or services that support guideline dissemination and clinician collaboration.

Awareness and events Active participation as platinum sponsor in major conferences and awareness events signals openness to event-based partnerships, sponsor-tiered activations, and educational content collaborations that could be leveraged for targeted outreach to rare disease researchers, clinicians, and patient communities.

Technology leverage BBDF’s tech stack includes cloud, CRM, marketing, and analytics tools (Google Cloud, iCIMS, WordPress, Constant Contact, Piwik PRO). This suggests potential for partner services in donor CRM optimization, website analytics, marketing automation, and data-driven fundraising campaigns tailored to the rare disease sector.

Similar companies to Beyond Batten Disease Foundation

Beyond Batten Disease Foundation Tech Stack

Beyond Batten Disease Foundation uses 8 technology products and services including iCIMS, WordPress, Shopify, and more. Explore Beyond Batten Disease Foundation's tech stack below.

Media & News

Beyond Batten Disease Foundation's Email Address Formats

Beyond Batten Disease Foundation uses at least 4 email formats:
Beyond Batten Disease Foundation Email FormatsExamplePercentage
FLast@beyondbatten.orgJDoe@beyondbatten.org
63%
First@beyondbatten.orgJohn@beyondbatten.org
12%
Last@beyondbatten.orgDoe@beyondbatten.org
13%
FMLast@beyondbatten.orgJMDoe@beyondbatten.org
12%

Frequently Asked Questions

What is Beyond Batten Disease Foundation's phone number?

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You can contact Beyond Batten Disease Foundation's main corporate office by phone at . For more prospecting data, LeadIQ has access to up-to-date and accurate contact information within our platform. Find, capture, and sync contact data to your CRM and sales tools in one click.

What is Beyond Batten Disease Foundation's official website and social media links?

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Beyond Batten Disease Foundation's official website is beyondbatten.org and has social profiles on LinkedIn.

How much revenue does Beyond Batten Disease Foundation generate?

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As of October 2026, Beyond Batten Disease Foundation's annual revenue is estimated to be <$1M.

What is Beyond Batten Disease Foundation's SIC code and NAICS code?

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Beyond Batten Disease Foundation's SIC code is 8299 - Schools and Educational Services, Not Elsewhere Classified and NAICS code is 5417 - Scientific Research and Development Services.

How many employees does Beyond Batten Disease Foundation have currently?

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As of October 2026, Beyond Batten Disease Foundation has approximately 6 employees across 2 continents, including North America and Oceania. Key team members include Communications Manager: E. A., Development Manager: E. L. and Manager: S. V. Explore Beyond Batten Disease Foundation's employee directory with LeadIQ.

What industry does Beyond Batten Disease Foundation belong to?

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Beyond Batten Disease Foundation operates in the Research Services industry.

What technology does Beyond Batten Disease Foundation use?

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Beyond Batten Disease Foundation's tech stack includes iCIMS, WordPress, Shopify, Google Cloud, Constant Contact, WP Engine, Vimeo and Piwik PRO Core.

What is Beyond Batten Disease Foundation's email format?

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Beyond Batten Disease Foundation's email format typically follows the pattern of FLast@beyondbatten.org. Find more Beyond Batten Disease Foundation email formats with LeadIQ.

When was Beyond Batten Disease Foundation founded?

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Beyond Batten Disease Foundation was founded in 2008.
Beyond Batten Disease Foundation logo

Beyond Batten Disease Foundation

Research ServicesTexas, United States2-10 Employees

Beyond Batten Disease Foundation is a small nonprofit organization focused on juvenile Batten disease, based in Austin, Texas. It was founded in 2008 by Charlotte and Craig Benson after their daughter's diagnosis, with a mission to eradicate the disease by raising awareness and funding to accelerate research toward a treatment or cure. The foundation is described as a world leader in funding research for juvenile Batten disease.

Its work centers on supporting research and coordinating with partners to advance care and guidance for the condition. In 2021, BBDF partnered with Care Beyond Diagnosis to establish internationally validated management guidelines for CLN3 disease, a rare and fatal neurodegenerative disorder.

Section iconCompany Overview

Phone number
SIC Code
8299 - Schools and Educational Services, Not Elsewhere Classified
NAICS Code
5417 - Scientific Research and Development Services
Founded
2008
Employees
2-10

Section iconFunding & Financials

  • <$1M

    Beyond Batten Disease Foundation's revenue is estimated to be in the range of <$1M

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