Insights

Funding Leadership BBDF positions itself as the world leader in juvenile Batten disease research funding, presenting a strong potential for partnerships with research organizations, grant program support, and philanthropy-focused sponsorship opportunities.

Strategic Partnerships History of collaborative sponsorships and joint initiatives (Care Beyond Diagnosis, THX Pharma, Biocodex, and BDSRA involvement) suggests openness to co-funding programs, patient advocacy alliances, and cross-promotional research projects.

High-Impact Events Active engagement in key conferences and awareness days with Platinum sponsorships indicates opportunities to provide event sponsorships, branded awareness campaigns, and educational outreach partnerships around Batten disease.

Global Awareness Internationally validated management guidelines development and global awareness efforts point to services in medical communications, guideline dissemination, and digital outreach that could be offered to expand adoption and impact.

Resource-Constrained Small team size and revenue under 1 million suggest a need for scalable, low-friction partnerships, including grant-writing services, turnkey sponsorship packages, and cost-effective fundraising technology or consultancy.

Beyond Batten Disease Foundation Tech Stack

Beyond Batten Disease Foundation uses 8 technology products and services including Open Graph, Shopify, Priority Hints, and more. Explore Beyond Batten Disease Foundation's tech stack below.

  • Open Graph
    Content Management System
  • Shopify
    E-commerce
  • Priority Hints
    Performance
  • Cloudflare Bot Management
    Security
  • Google Tag Manager
    Tag Management
  • Pinterest
    Visual And User Generated Content Marketing
  • prettyPhoto
    Web Tools And Plugins
  • Max Mega Menu
    Widgets

Beyond Batten Disease Foundation's Email Address Formats

Beyond Batten Disease Foundation uses at least 1 format(s):
Beyond Batten Disease Foundation Email FormatsExamplePercentage
FLast@beyondbatten.orgJDoe@beyondbatten.org
63%
First@beyondbatten.orgJohn@beyondbatten.org
12%
Last@beyondbatten.orgDoe@beyondbatten.org
13%
FMLast@beyondbatten.orgJMDoe@beyondbatten.org
12%

Frequently Asked Questions

What is Beyond Batten Disease Foundation's phone number?

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You can contact Beyond Batten Disease Foundation's main corporate office by phone at . For more prospecting data, LeadIQ has access to up-to-date and accurate contact information within our platform. Find, capture, and sync contact data to your CRM and sales tools in one click.

What is Beyond Batten Disease Foundation's official website and social media links?

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Beyond Batten Disease Foundation's official website is beyondbatten.org and has social profiles on LinkedIn.

What is Beyond Batten Disease Foundation's NAICS code?

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Beyond Batten Disease Foundation's NAICS code is 5417 - Scientific Research and Development Services.

How many employees does Beyond Batten Disease Foundation have currently?

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As of July 2026, Beyond Batten Disease Foundation has approximately 6 employees across 1 continents, including North America. Key team members include Communications Manager: E. A.Development Manager: E. L.Manager: S. V.. Explore Beyond Batten Disease Foundation's employee directory with LeadIQ.

What industry does Beyond Batten Disease Foundation belong to?

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Beyond Batten Disease Foundation operates in the Research Services industry.

What technology does Beyond Batten Disease Foundation use?

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Beyond Batten Disease Foundation's tech stack includes Open GraphShopifyPriority HintsCloudflare Bot ManagementGoogle Tag ManagerPinterestprettyPhotoMax Mega Menu.

What is Beyond Batten Disease Foundation's email format?

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Beyond Batten Disease Foundation's email format typically follows the pattern of FLast@beyondbatten.org. Find more Beyond Batten Disease Foundation email formats with LeadIQ.

When was Beyond Batten Disease Foundation founded?

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Beyond Batten Disease Foundation was founded in 2008.
Beyond Batten Disease Foundation logo

Beyond Batten Disease Foundation

Research ServicesTexas, United States2-10 Employees

Beyond Batten Disease Foundation is a small nonprofit organization focused on juvenile Batten disease, based in Austin, Texas. It was founded in 2008 by Charlotte and Craig Benson after their daughter's diagnosis, with a mission to eradicate the disease by raising awareness and funding to accelerate research toward a treatment or cure. The foundation is described as a world leader in funding research for juvenile Batten disease.

Its work centers on supporting research and coordinating with partners to advance care and guidance for the condition. In 2021, BBDF partnered with Care Beyond Diagnosis to establish internationally validated management guidelines for CLN3 disease, a rare and fatal neurodegenerative disorder.

Section iconCompany Overview

Phone number
NAICS Code
5417 - Scientific Research and Development Services
Founded
2008
Employees
2-10

Section iconFunding & Financials

  • $1M

    Beyond Batten Disease Foundation's revenue is estimated to be in the range of $1M

Section iconFunding & Financials

  • $1M

    Beyond Batten Disease Foundation's revenue is estimated to be in the range of $1M

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