Insights

Fundraising potential IFCR is a small nonprofit focused on funding CDKL5 research with annual revenue likely under 1 million. This indicates a lean organization with a strong reliance on partnerships, grants, and donor programs, presenting opportunities for grant writing services, donor management platforms, and sponsorship package development.

Executive leadership Recent appointment of Robyn Raphael as Executive Director suggests a leadership transition that often accompanies strategic planning, partnership expansion, and fundraising drives. Capture opportunities through executive outreach, high-level alliances, and tailored collaboration pitches aligned to new strategic priorities.

Awareness and education The foundation emphasizes raising awareness among medical and lay communities. This creates demand for medical communications, patient-friendly content, advocacy campaigns, and digital education programs that can be monetized or supported through partnerships with pharma, clinics, or patient networks.

Digital footprint Tech stack includes SEO, analytics, video, and content management tools, indicating a mature online presence with data-driven opportunities. Propose services for SEO optimization, content localization, website optimization, analytics dashboards, and video production to amplify outreach and donor engagement.

Collaborative potential Similar nonprofits in the space vary in size but share common funding challenges and demand for strategic partnerships. Target collaboration opportunities, joint grant applications, research consortia, and shared program development to expand impact while reducing individual fundraising burden.

International Foundation for CDKL5 Research (IFCR) Tech Stack

International Foundation for CDKL5 Research (IFCR) uses 8 technology products and services including Open Graph, oEmbed, DNS.com, and more. Explore International Foundation for CDKL5 Research (IFCR)'s tech stack below.

  • Open Graph
    Content Management System
  • oEmbed
    Dev Tools
  • DNS.com
    Domain Name Services
  • JSON-LD
    Javascript Frameworks
  • Office 365
    Office Suites
  • Yoast SEO
    Search Engines
  • YouTube
    Video Players
  • Google Analytics
    Web Analytics

International Foundation for CDKL5 Research (IFCR)'s Email Address Formats

International Foundation for CDKL5 Research (IFCR) uses at least 1 format(s):
International Foundation for CDKL5 Research (IFCR) Email FormatsExamplePercentage
FLast@cdkl5.comJDoe@cdkl5.com
75%
First.Last@cdkl5.comJohn.Doe@cdkl5.com
25%

Frequently Asked Questions

What is International Foundation for CDKL5 Research (IFCR)'s official website and social media links?

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International Foundation for CDKL5 Research (IFCR)'s official website is cdkl5.com and has social profiles on LinkedIn.

What is International Foundation for CDKL5 Research (IFCR)'s NAICS code?

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International Foundation for CDKL5 Research (IFCR)'s NAICS code is 5417 - Scientific Research and Development Services.

How many employees does International Foundation for CDKL5 Research (IFCR) have currently?

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As of July 2026, International Foundation for CDKL5 Research (IFCR) has approximately 8 employees across 1 continents, including North America. Key team members include Director Of Australian Foundation For Cdkl5 Research: S. L.. Explore International Foundation for CDKL5 Research (IFCR)'s employee directory with LeadIQ.

What industry does International Foundation for CDKL5 Research (IFCR) belong to?

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International Foundation for CDKL5 Research (IFCR) operates in the Research Services industry.

What technology does International Foundation for CDKL5 Research (IFCR) use?

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International Foundation for CDKL5 Research (IFCR)'s tech stack includes Open GraphoEmbedDNS.comJSON-LDOffice 365Yoast SEOYouTubeGoogle Analytics.

What is International Foundation for CDKL5 Research (IFCR)'s email format?

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International Foundation for CDKL5 Research (IFCR)'s email format typically follows the pattern of FLast@cdkl5.com. Find more International Foundation for CDKL5 Research (IFCR) email formats with LeadIQ.

When was International Foundation for CDKL5 Research (IFCR) founded?

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International Foundation for CDKL5 Research (IFCR) was founded in 2009.
International Foundation for CDKL5 Research (IFCR) logo

International Foundation for CDKL5 Research (IFCR)

Research ServicesOhio, United States2-10 Employees

The International Foundation for CDKL5 Research (IFCR) is a nonprofit organization that funds research into CDKL5 Deficiency Disorder with the aim of developing treatments and a cure, while supporting affected individuals and families. Its activities include funding both scientific and clinical research and raising awareness of the disorder within medical and lay communities. The organization is based in Wadsworth, Ohio, operating from a PO Box 926, Wadsworth, OH 44282, and maintains a small staff of approximately 2 to 10 employees. IFCR maintains a website at cdkl5.com to provide information on treatment advances and support for CDKL5 families and caregivers. In June 2025, CDKL5 Alliance announced the appointment of Robyn Raphael as Executive Director of the IFCR.

Section iconCompany Overview

Website
cdkl5.com
NAICS Code
5417 - Scientific Research and Development Services
Founded
2009
Employees
2-10

Section iconFunding & Financials

  • $1M

    International Foundation for CDKL5 Research (IFCR)'s revenue is estimated to be in the range of $1M

Section iconFunding & Financials

  • $1M

    International Foundation for CDKL5 Research (IFCR)'s revenue is estimated to be in the range of $1M

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