Growing Digital Presence The Dravet Syndrome Foundation launched a new website and an active social media presence, including a Spanish-speaking support group, indicating a focus on expanding digital engagement and outreach channels to better connect with affected families and caregivers.

Strategic Partnerships Recent collaborations with organizations like Tscalliance, UCB, and Children’s Colorado showcase the foundation’s openness to partnering with industry players, which can open opportunities for technology solutions, sponsorships, and joint research initiatives.

Research and Data Needs With ongoing research programs, including the Dravet Lifespan Multidisciplinary Clinic and Voice of the Patient report, there is potential demand for data management, survey tools, and analytics software to enhance research outcomes and patient engagement.

Fundraising Expansion While current revenue is modest, the foundation’s active multiple programs and recent promotional efforts suggest opportunities for fundraising technology solutions, donor engagement platforms, and grant management systems to support growth.

Technological Modernization The foundation’s recent website launch and use of modern tech stack components present a potential for further digital transformation services such as CRM integration, cybersecurity solutions, and advanced analytics to optimize operations and stakeholder outreach.