Insights

Fundraising Growth DSF runs large annual fundraising events such as Dance for Dravet and partners with other organizations, indicating opportunities to offer event marketing services, sponsorship monetization solutions, and donor CRM enhancements to optimize fundraising campaigns.

Transparency Trust With ten consecutive years of Platinum Seal of Transparency from Candid, DSF prioritizes credibility and donor stewardship, suggesting potential for advanced analytics, impact reporting tools, and premium transparency dashboards to attract larger corporate and philanthropic donors.

Caregiver Engagement Active DSF programs include a Caregiver Community Book Club, indicating receptiveness to community-building platforms, content marketing partnerships, and member engagement software to deepen supporter loyalty and recurring giving.

Collaborative Pipeline History of partnerships with Tsc Alliance, LGS Foundation, and UCB indicates DSF openness to cross-organizational initiatives, which could translate into joint grant programs, data sharing platforms, and sponsored research registries.

Research Infrastructure DSF operates multiple research-focused initiatives (Research Grant Awards, DSF Research Roundtable, International Ion Channel Patient Registry) that align with technology vendors offering grant management, clinical registry solutions, data analytics, and cloud-based collaboration tools.

Dravet Syndrome Foundation Tech Stack

Dravet Syndrome Foundation uses 8 technology products and services including Sift, Cloudflare, MySQL, and more. Explore Dravet Syndrome Foundation's tech stack below.

  • Sift
    Analytics
  • Cloudflare
    Content Management System
  • MySQL
    Database
  • WooCommerce
    E-commerce
  • Slick
    Javascript Libraries
  • Swiper
    Javascript Libraries
  • SiteGround
    Platform As A Service
  • Google Analytics
    Web Analytics

Media & News

Dravet Syndrome Foundation's Email Address Formats

Dravet Syndrome Foundation uses at least 1 format(s):
Dravet Syndrome Foundation Email FormatsExamplePercentage
First@dravetfoundation.orgJohn@dravetfoundation.org
78%
First.L@dravetfoundation.orgJohn.D@dravetfoundation.org
22%

Frequently Asked Questions

What is Dravet Syndrome Foundation's phone number?

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You can contact Dravet Syndrome Foundation's main corporate office by phone at . For more prospecting data, LeadIQ has access to up-to-date and accurate contact information within our platform. Find, capture, and sync contact data to your CRM and sales tools in one click.

What is Dravet Syndrome Foundation's official website and social media links?

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Dravet Syndrome Foundation's official website is dravetfoundation.org and has social profiles on LinkedIn.

How much revenue does Dravet Syndrome Foundation generate?

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As of July 2026, Dravet Syndrome Foundation's annual revenue is estimated to be <$1M.

What is Dravet Syndrome Foundation's SIC code NAICS code?

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Dravet Syndrome Foundation's SIC code is 6732 - Educational, Religious, and Charitable Trusts NAICS code is 8132 - Grantmaking and Giving Services.

How many employees does Dravet Syndrome Foundation have currently?

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As of July 2026, Dravet Syndrome Foundation has approximately 23 employees across 3 continents, including North AmericaAfricaAsia. Key team members include Interim President: C. G.Vice President: T. O.Campaign Director: M. R.. Explore Dravet Syndrome Foundation's employee directory with LeadIQ.

What industry does Dravet Syndrome Foundation belong to?

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Dravet Syndrome Foundation operates in the Philanthropic Fundraising Services industry.

What technology does Dravet Syndrome Foundation use?

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Dravet Syndrome Foundation's tech stack includes SiftCloudflareMySQLWooCommerceSlickSwiperSiteGroundGoogle Analytics.

What is Dravet Syndrome Foundation's email format?

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Dravet Syndrome Foundation's email format typically follows the pattern of First@dravetfoundation.org. Find more Dravet Syndrome Foundation email formats with LeadIQ.

When was Dravet Syndrome Foundation founded?

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Dravet Syndrome Foundation was founded in 2009.
Dravet Syndrome Foundation logo

Dravet Syndrome Foundation

Philanthropic Fundraising ServicesNew Jersey, United States11-50 Employees

The Dravet Syndrome Foundation is a nonprofit organization that raises funds for research into Dravet syndrome and related epilepsies, works to raise awareness of these conditions, and provides support to affected individuals and families. It implements its mission through four core programs: Research Grant Awards, the DSF Research Roundtable, IICEPR (International Ion Channel Patient Registry), and the Patient Assistance Grant Program. Based in Cherry Hill, New Jersey, the organization operates as a small to mid-sized nonprofit within the philanthropic fundraising sector.

Recent activity includes collaborations with other patient-advocacy and research groups, such as partnerships with the Tscalliance and with Children’s Colorado to advance a Dravet natural history study and related initiatives. It also maintains caregiver-focused community programs, including the DSF Caregiver Community Book Club. In addition, the foundation has earned recognition for transparency, receiving the Platinum Seal of Transparency from Candid for ten consecutive years as of January 2026.

Section iconCompany Overview

Phone number
SIC Code
6732 - Educational, Religious, and Charitable Trusts
NAICS Code
8132 - Grantmaking and Giving Services
Founded
2009
Employees
11-50

Section iconFunding & Financials

  • <$1M

    Dravet Syndrome Foundation's revenue is estimated to be in the range of <$1M

Section iconFunding & Financials

  • <$1M

    Dravet Syndrome Foundation's revenue is estimated to be in the range of <$1M

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