Dravet Syndrome Foundation Employee Directory
Philanthropic Fundraising ServicesNew Jersey, United States11-50 Employees
The Dravet Syndrome Foundation is a nonprofit organization that raises funds for research into Dravet syndrome and related epilepsies, works to raise awareness of these conditions, and provides support to affected individuals and families. It implements its mission through four core programs: Research Grant Awards, the DSF Research Roundtable, IICEPR (International Ion Channel Patient Registry), and the Patient Assistance Grant Program. Based in Cherry Hill, New Jersey, the organization operates as a small to mid-sized nonprofit within the philanthropic fundraising sector. Recent activity includes collaborations with other patient-advocacy and research groups, such as partnerships with the Tscalliance and with Children’s Colorado to advance a Dravet natural history study and related initiatives. It also maintains caregiver-focused community programs, including the DSF Caregiver Community Book Club. In addition, the foundation has earned recognition for transparency, receiving the Platinum Seal of Transparency from Candid for ten consecutive years as of January 2026.