Insights

Non-profit scale The United Leukodystrophy Foundation is a mid-sized non-profit (11-50 employees) with a substantial annual revenue range (simulated at 100M-250M), suggesting significant fundraising capabilities and potential for major donor collaborations, corporate partnerships, and grant-funded initiatives.

Sponsorship potential ULF is donation-driven and regularly hosts scientific symposia and family conferences, indicating opportunities for corporate sponsorships, event partnerships, and cause marketing with pharmaceutical, biotech, and healthcare brands aligned to leukodystrophy research and patient support.

Digital fundraising The tech stack includes WordPress, Shopify, and AWS, signaling readiness for online fundraising campaigns, merchandise-driven revenue, and scalable web experiences; sales motions could target enhancements in e-commerce donations and digital sponsorship packages.

Strategic alliances ULF engages in research promotion and patient information networks, highlighting potential for collaborations with healthcare providers, clinics, genetic counseling services, and research institutions to expand reach and co-develop programs.

Executive leadership Past leadership change and formal executive director appointment indicate an openness to new strategic partnerships and fundraising initiatives; target outreach to align with their mission, governance priorities, and donor engagement opportunities.

Similar companies to United Leukodystrophy Foundation

United Leukodystrophy Foundation Tech Stack

United Leukodystrophy Foundation uses 8 technology products and services including Amazon Web Services, Sucuri, RSS, and more. Explore United Leukodystrophy Foundation's tech stack below.

United Leukodystrophy Foundation's Email Address Formats

United Leukodystrophy Foundation uses at least 2 email formats:
United Leukodystrophy Foundation Email FormatsExamplePercentage
First@ulf.orgJohn@ulf.org
80%
FirstLast@ulf.orgJohnDoe@ulf.org
20%

Frequently Asked Questions

What is United Leukodystrophy Foundation's official website and social media links?

Minus sign iconPlus sign icon
United Leukodystrophy Foundation's official website is ulf.org and has social profiles on LinkedIn.

How much revenue does United Leukodystrophy Foundation generate?

Minus sign iconPlus sign icon
As of November 2026, United Leukodystrophy Foundation's annual revenue is estimated to be $100M - $250M.

What is United Leukodystrophy Foundation's SIC code and NAICS code?

Minus sign iconPlus sign icon
United Leukodystrophy Foundation's SIC code is 7389 - Business Services, Not Elsewhere Classified and NAICS code is 561499 - All Other Business Support Services.

How many employees does United Leukodystrophy Foundation have currently?

Minus sign iconPlus sign icon
As of November 2026, United Leukodystrophy Foundation has approximately 13 employees across 1 continents, including North America. Key team members include Executive Director: C. R., Director Of Donor Relations: R. R. and Operations Assistant: T. E. Explore United Leukodystrophy Foundation's employee directory with LeadIQ.

What industry does United Leukodystrophy Foundation belong to?

Minus sign iconPlus sign icon
United Leukodystrophy Foundation operates in the Fundraising industry.

What technology does United Leukodystrophy Foundation use?

Minus sign iconPlus sign icon
United Leukodystrophy Foundation's tech stack includes Amazon Web Services, Sucuri, RSS, WordPress, Shopify, Microsoft 365, JSON-LD and Bootstrap.

What is United Leukodystrophy Foundation's email format?

Minus sign iconPlus sign icon
United Leukodystrophy Foundation's email format typically follows the pattern of First@ulf.org. Find more United Leukodystrophy Foundation email formats with LeadIQ.

When was United Leukodystrophy Foundation founded?

Minus sign iconPlus sign icon
United Leukodystrophy Foundation was founded in 1983.
United Leukodystrophy Foundation logo

United Leukodystrophy Foundation

FundraisingIllinois, United States11-50 Employees

The United Leukodystrophy Foundation, a nonprofit organization founded in 1982, focuses on leukodystrophies, a set of genetic nervous system disorders affecting the myelin sheath. It provides patients and families with information and assistance in locating medical care, social services, and genetic counseling, while fostering a network among affected families. It also serves as an information source for healthcare providers and supports research into causes, treatments, and prevention.

Based in Dekalb, Illinois, the foundation operates as a small nonprofit funded solely by donations. In addition to patient support, it acts as an information resource for healthcare providers and works to raise public awareness about leukodystrophies. In September 2023, the organization announced the appointment of Diane Fennimore as its Executive Director, marking a notable leadership development.

Section iconCompany Overview

Website
ulf.org
SIC Code
7389 - Business Services, Not Elsewhere Classified
NAICS Code
561499 - All Other Business Support Services
Founded
1983
Employees
11-50

Section iconFunding & Financials

  • $100M - $250M

    United Leukodystrophy Foundation's revenue is estimated to be in the range of $100M - $250M

Ready to create more pipeline?

Get a demo and discover why thousands of SDR and Sales teams trust
LeadIQ to help them build pipeline confidently.

© LeadIQ, Inc. All rights reserved.