Insights

Non-Profit Funding The United Leukodystrophy Foundation's substantial revenue range of 100 million to 250 million, supported solely by donations, presents significant opportunities for fundraising solutions, corporate sponsorships, and partnership programs to enhance its donor engagement and growth initiatives.

Technology Adoption Utilizing platforms like WordPress and Google Analytics indicates the foundation's openness to digital outreach and data-driven strategies, offering potential for advanced digital marketing, website optimization, and targeted awareness campaigns.

Leadership Expansion The recent appointment of a new Executive Director suggests a strategic focus on organizational growth and mission amplification, creating opportunities for leadership collaboration, consulting services, and program development support.

Research Support As an organization dedicated to promoting research into leukodystrophies, there is potential for partnerships with biotech firms, medical research companies, and educational institutions seeking to fund or participate in disease research initiatives.

Targeted Engagement With a focused mission in a niche genetic neurological disorder space, the foundation presents a targeted audience for health tech companies, patient support solutions, and specialized medical services aiming to engage families and healthcare providers in the leukodystrophies community.

Similar companies to United Leukodystrophy Foundation

United Leukodystrophy Foundation Tech Stack

United Leukodystrophy Foundation uses 8 technology products and services including WordPress, Cloudflare, Font Awesome, and more. Explore United Leukodystrophy Foundation's tech stack below.

  • WordPress
    Content Management System
  • Cloudflare
    Content Management System
  • Font Awesome
    Font Scripts
  • Twemoji
    Font Scripts
  • X-XSS-Protection
    Security
  • Google Analytics
    Web Analytics
  • TablePress
    Web Platform Extensions
  • Ivory Search
    Web Platform Extensions

United Leukodystrophy Foundation's Email Address Formats

United Leukodystrophy Foundation uses at least 1 format(s):
United Leukodystrophy Foundation Email FormatsExamplePercentage
First@ulf.orgJohn@ulf.org
80%
FirstLast@ulf.orgJohnDoe@ulf.org
20%

Frequently Asked Questions

Where is United Leukodystrophy Foundation's headquarters located?

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United Leukodystrophy Foundation's main headquarters is located at 224 North Second Street Suite 2 Dekalb, Illinois 60115 United States. The company has employees across 1 continents, including North America.

What is United Leukodystrophy Foundation's official website and social media links?

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United Leukodystrophy Foundation's official website is ulf.org and has social profiles on LinkedIn.

What is United Leukodystrophy Foundation's SIC code NAICS code?

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United Leukodystrophy Foundation's SIC code is 7389 - Business Services, Not Elsewhere Classified NAICS code is 561499 - All Other Business Support Services.

How many employees does United Leukodystrophy Foundation have currently?

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As of June 2026, United Leukodystrophy Foundation has approximately 11 employees across 1 continents, including North America. Key team members include Executive Director: B. B.Executive Director: C. R.Director Of Operations: K. H.. Explore United Leukodystrophy Foundation's employee directory with LeadIQ.

What industry does United Leukodystrophy Foundation belong to?

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United Leukodystrophy Foundation operates in the Fundraising industry.

What technology does United Leukodystrophy Foundation use?

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United Leukodystrophy Foundation's tech stack includes WordPressCloudflareFont AwesomeTwemojiX-XSS-ProtectionGoogle AnalyticsTablePressIvory Search.

What is United Leukodystrophy Foundation's email format?

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United Leukodystrophy Foundation's email format typically follows the pattern of First@ulf.org. Find more United Leukodystrophy Foundation email formats with LeadIQ.

When was United Leukodystrophy Foundation founded?

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United Leukodystrophy Foundation was founded in 1983.

United Leukodystrophy Foundation

FundraisingIllinois, United States11-50 Employees

The United Leukodystrophy Foundation, a nonprofit organization founded in 1982, focuses on leukodystrophies, a set of genetic nervous system disorders affecting the myelin sheath. It provides patients and families with information and assistance in locating medical care, social services, and genetic counseling, while fostering a network among affected families. It also serves as an information source for healthcare providers and supports research into causes, treatments, and prevention.

Based in Dekalb, Illinois, the foundation operates as a small nonprofit funded solely by donations. In addition to patient support, it acts as an information resource for healthcare providers and works to raise public awareness about leukodystrophies. In September 2023, the organization announced the appointment of Diane Fennimore as its Executive Director, marking a notable leadership development.

Section iconCompany Overview

Headquarters
224 North Second Street Suite 2 Dekalb, Illinois 60115 United States
Website
ulf.org
SIC Code
7389 - Business Services, Not Elsewhere Classified
NAICS Code
561499 - All Other Business Support Services
Founded
1983
Employees
11-50

Section iconFunding & Financials

  • $100M$250M

    United Leukodystrophy Foundation's revenue is estimated to be in the range of $100M$250M

Section iconFunding & Financials

  • $100M$250M

    United Leukodystrophy Foundation's revenue is estimated to be in the range of $100M$250M

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