Insights

Non-profit focus Target organizations like The RYR-1 Foundation as a close-aligned charity focused on research funding, patient registries, and medical professional education for RYR-1-RD, presenting opportunities for grant management tools, donor engagement platforms, and research collaboration solutions.

Research funding Opportunity to offer grant management software, compliant fundraising campaigns, and grant reporting dashboards to streamline their grant cycles, tracking, and impact analytics for researchers and supporters.

Patient advocacy Potential for patient and family engagement platforms, community portals, and event management tech to support Family Conferences, patient registries, and global awareness initiatives.

Global reach Recent expansion to Portuguese content suggests multilingual outreach. Propose localization services, multilingual CRM, and international donor acquisition strategies to expand funding and partnerships.

Financial scale With revenue in the millions but a small staff, they may value cost-efficient, scalable solutions (SaaS, hosted services) and partner programs that fit a lean nonprofit operating model while expanding impact.

THE RYR-1 FOUNDATION Tech Stack

THE RYR-1 FOUNDATION uses 8 technology products and services including Google Analytics Enhanced eCommerce, WordPress, RSS, and more. Explore THE RYR-1 FOUNDATION's tech stack below.

  • Google Analytics Enhanced eCommerce
    Analytics
  • WordPress
    Content Management System
  • RSS
    Content Management System
  • Font Awesome
    Font Scripts
  • jQuery
    Javascript Libraries
  • Google Maps
    Maps
  • reCAPTCHA
    Security
  • Google Search Console
    Web Analytics

THE RYR-1 FOUNDATION's Email Address Formats

THE RYR-1 FOUNDATION uses at least 1 format(s):
THE RYR-1 FOUNDATION Email FormatsExamplePercentage
First@ryr1.orgJohn@ryr1.org
100%

Frequently Asked Questions

What is THE RYR-1 FOUNDATION's official website and social media links?

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THE RYR-1 FOUNDATION's official website is ryr1.org and has social profiles on LinkedIn.

How much revenue does THE RYR-1 FOUNDATION generate?

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As of August 2026, THE RYR-1 FOUNDATION's annual revenue is estimated to be $1M - $10M.

What is THE RYR-1 FOUNDATION's SIC code NAICS code?

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THE RYR-1 FOUNDATION's SIC code is 8731 - Commercial Physical and Biological Research NAICS code is 813 - Religious, Grantmaking, Civic, Professional, and Similar Organizations.

How many employees does THE RYR-1 FOUNDATION have currently?

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As of August 2026, THE RYR-1 FOUNDATION has approximately 8 employees across 2 continents, including North AmericaAsia. Key team members include Director Of Development And Math Workshop: E. M.Community Relations: N. B.. Explore THE RYR-1 FOUNDATION's employee directory with LeadIQ.

What industry does THE RYR-1 FOUNDATION belong to?

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THE RYR-1 FOUNDATION operates in the Non-profit Organizations industry.

What technology does THE RYR-1 FOUNDATION use?

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THE RYR-1 FOUNDATION's tech stack includes Google Analytics Enhanced eCommerceWordPressRSSFont AwesomejQueryGoogle MapsreCAPTCHAGoogle Search Console.

What is THE RYR-1 FOUNDATION's email format?

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THE RYR-1 FOUNDATION's email format typically follows the pattern of First@ryr1.org. Find more THE RYR-1 FOUNDATION email formats with LeadIQ.

When was THE RYR-1 FOUNDATION founded?

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THE RYR-1 FOUNDATION was founded in 2014.
THE RYR-1 FOUNDATION logo

THE RYR-1 FOUNDATION

Non-profit OrganizationsPennsylvania, United States2-10 Employees

The RYR-1 Foundation is a small nonprofit public charity based in Pittsburgh, Pennsylvania, focused on diseases linked to the RYR-1 gene. It is the only organization exclusively dedicated to RYR-1-related diseases, pursuing a mission to advance treatments or a cure and to support research through grants and a patient registry. It also works to educate medical professionals about RYR-1-RD via resources on its website and direct engagement with clinicians worldwide.

It provides resources and advocacy for patients and families affected by RYR-1-RD, including information on its website, social media, and Family Conferences. Recent activities include attending a Research Workshop and Family Conference in June 2025 and launching a Portuguese version of its materials in October 2023, highlighting ongoing outreach from its Pittsburgh base.

Section iconCompany Overview

Website
ryr1.org
SIC Code
8731 - Commercial Physical and Biological Research
NAICS Code
813 - Religious, Grantmaking, Civic, Professional, and Similar Organizations
Founded
2014
Employees
2-10

Section iconFunding & Financials

  • $1M - $10M

    THE RYR-1 FOUNDATION's revenue is estimated to be in the range of $1M - $10M

Section iconFunding & Financials

  • $1M - $10M

    THE RYR-1 FOUNDATION's revenue is estimated to be in the range of $1M - $10M

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