Rare Genomics Institute Employee Directory
Biotechnology ResearchCalifornia, United States11-50 Employees
Rare Genomics Institute (RG) is a biotechnology research organization founded in 2011 to address the healthcare gap faced by patients with undiagnosed rare diseases. It coordinates access to genetic sequencing and related research services through its network of affiliates, supporting diagnostic evaluation, treatment options, and pathways toward cure. Based in Downey, California, RG operates as a nonprofit patient advocacy group that also fosters an online community for rare disease patients and funds research through a yearly grant competition. Its activities connect the rare disease community with researchers and clinicians to advance understanding and care. In 2026, a collaboration resulted in PacBio's HiFi long-read sequencing being integrated into iHope's international network to improve rare disease diagnostics.
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