Insights

Community Engagement The Rare Disease Foundation actively connects parents and caregivers through local and online Parent 2 Parent Resource Networks, presenting an opportunity to offer tailored digital engagement tools, fundraising platforms, or community management solutions to enhance support networks.

Partnership Opportunities Recent collaborations with organizations like The Cultch and Erganeo highlight the foundation's openness to strategic partnerships, which could be avenues for offering event sponsorship, creative content development, or joint fundraising initiatives.

Digital Outreach With a tech stack including Shopify, Mailchimp, and social media channels, there's potential to target the foundation’s digital channels for marketing collaboration, donor outreach programs, or content marketing services aimed at raising awareness and expanding their network.

Funding and Growth Although revenue remains modest, the foundation’s focus on funding patient-centric research and expanding networks suggests opportunities to provide grant management solutions, fundraising platforms, or donor engagement tools to support their growth ambitions.

Innovative Research Support Their mission to bridge research and care indicates potential for sales of specialized research management software, data analytics tools, or collaborative platforms that facilitate innovative, patient-focused research projects with a global impact.

Rare Disease Foundation Tech Stack

Rare Disease Foundation uses 8 technology products and services including Shopify, Mailchimp, TweenMax, and more. Explore Rare Disease Foundation's tech stack below.

  • Shopify
    E-commerce
  • Mailchimp
    Email
  • TweenMax
    Javascript Frameworks
  • PageFly
    Page Builders
  • PayPal
    Payment Processing
  • Priority Hints
    Performance
  • MediaElement.js
    Video Players
  • Twitter
    Widgets

Rare Disease Foundation's Email Address Formats

Rare Disease Foundation uses at least 1 format(s):
Rare Disease Foundation Email FormatsExamplePercentage
FLast@rarediseasefoundation.orgJDoe@rarediseasefoundation.org
100%

Frequently Asked Questions

Where is Rare Disease Foundation's headquarters located?

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Rare Disease Foundation's main headquarters is located at 4500 C234 Vancouver, British Columbia v6h 3n1 Canada. The company has employees across 2 continents, including North AmericaAsia.

What is Rare Disease Foundation's phone number?

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You can contact Rare Disease Foundation's main corporate office by phone at . For more prospecting data, LeadIQ has access to up-to-date and accurate contact information within our platform. Find, capture, and sync contact data to your CRM and sales tools in one click.

What is Rare Disease Foundation's official website and social media links?

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Rare Disease Foundation's official website is rarediseasefoundation.org and has social profiles on LinkedIn.

What is Rare Disease Foundation's SIC code NAICS code?

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Rare Disease Foundation's SIC code is 4899 - Communications Services, Not Elsewhere Classified NAICS code is 5417 - Scientific Research and Development Services.

How many employees does Rare Disease Foundation have currently?

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As of April 2026, Rare Disease Foundation has approximately 10 employees across 2 continents, including North AmericaAsia. Key team members include Executive Director: D. C.Parent Lead: L. B.It Manager: M. S.. Explore Rare Disease Foundation's employee directory with LeadIQ.

What industry does Rare Disease Foundation belong to?

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Rare Disease Foundation operates in the Research Services industry.

What technology does Rare Disease Foundation use?

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Rare Disease Foundation's tech stack includes ShopifyMailchimpTweenMaxPageFlyPayPalPriority HintsMediaElement.jsTwitter.

What is Rare Disease Foundation's email format?

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Rare Disease Foundation's email format typically follows the pattern of FLast@rarediseasefoundation.org. Find more Rare Disease Foundation email formats with LeadIQ.

When was Rare Disease Foundation founded?

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Rare Disease Foundation was founded in 2009.

Rare Disease Foundation

Research ServicesBritish Columbia, Canada2-10 Employees

One in 12 people will be affected by a rare disease in their lifetime and children bear the brunt of this burden.  The Rare Disease Foundation bridges the gap between research and care for children with rare diseases, funding inspired patient-focused research projects poised to directly impact their care and quality of life. Our vision is to transform the world of rare disease care. The Rare Disease Foundation empowers parents to solve problems that are commonly seen in the rare diseases by linking parents together locally and on the web with our Parent 2 Parent Resource Networks. We are always looking to expand so please contact us if you wish to start a group in your area.

Section iconCompany Overview

Headquarters
4500 C234 Vancouver, British Columbia v6h 3n1 Canada
Phone number
SIC Code
4899 - Communications Services, Not Elsewhere Classified
NAICS Code
5417 - Scientific Research and Development Services
Founded
2009
Employees
2-10

Section iconFunding & Financials

  • $1M

    Rare Disease Foundation's revenue is estimated to be in the range of $1M

Section iconFunding & Financials

  • $1M

    Rare Disease Foundation's revenue is estimated to be in the range of $1M

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