Insights

Targeted Data Pairing RDDT collaborates with community-based provider health organizations to monetize de-identified patient data for commercially sponsored searches, presenting a direct avenue to scale data partnerships with pharma through consented, privacy-preserving datasets.

Rare Disease Focus The company's core focus on undiagnosed and rare/ultra-rare conditions positions it as a strategic partner for pharma seeking patients in orphan/precision medicine programs and targeted clinical studies.

Collaborative Scale With access to 400k patient lives via partner networks, there is an opportunity to expand contract reach, onboarding additional provider organizations, and offering tiered data access for sponsors with varying study scopes.

Digital Maturity Utilizing modern tech stack (React, SEO tooling, secure protocols) indicates readiness for scalable digital engagement, partner portals, and compliant data-request workflows that can be showcased to prospective sponsors.

Financial Positioning Current revenue range and modest funding suggest a lean, high-growth partner with potential for co-investment in larger data collaborations, pilot programs, or milestone-based engagements with pharmaceutical sponsors.

Similar companies to Rare Disease Data Trust (RDDT)

Rare Disease Data Trust (RDDT) Tech Stack

Rare Disease Data Trust (RDDT) uses 8 technology products and services including html5media, WordPress, oEmbed, and more. Explore Rare Disease Data Trust (RDDT)'s tech stack below.

  • html5media
    Audio, Video, Graphics
  • Content Management System
  • oEmbed
    Dev Tools
  • Google Fonts API
    Font Scripts
  • React
    Javascript Frameworks
  • Yoast SEO
    Search Engines
  • HSTS
    Security
  • HTTP/3
    Web & Portal Technology

Rare Disease Data Trust (RDDT)'s Email Address Formats

Rare Disease Data Trust (RDDT) uses at least 3 email formats:
Rare Disease Data Trust (RDDT) Email FormatsExamplePercentage
FLast@finding-rare.comJDoe@finding-rare.com
73%
First.Last@finding-rare.comJohn.Doe@finding-rare.com
18%
FirstL@finding-rare.comJohnD@finding-rare.com
9%

Frequently Asked Questions

What is Rare Disease Data Trust (RDDT)'s official website and social media links?

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Rare Disease Data Trust (RDDT)'s official website is finding-rare.com and has social profiles on LinkedIn and Crunchbase.

How much revenue does Rare Disease Data Trust (RDDT) generate?

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As of October 2026, Rare Disease Data Trust (RDDT)'s annual revenue is estimated to be $1M - $10M.

What is Rare Disease Data Trust (RDDT)'s NAICS code?

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Rare Disease Data Trust (RDDT)'s NAICS code is 62 - Health Care and Social Assistance.

How many employees does Rare Disease Data Trust (RDDT) have currently?

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As of October 2026, Rare Disease Data Trust (RDDT) has approximately 8 employees across 2 continents, including North America and Asia. Key team members include Vice President Operations: D. N. Explore Rare Disease Data Trust (RDDT)'s employee directory with LeadIQ.

What industry does Rare Disease Data Trust (RDDT) belong to?

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Rare Disease Data Trust (RDDT) operates in the Hospitals and Health Care industry.

What technology does Rare Disease Data Trust (RDDT) use?

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Rare Disease Data Trust (RDDT)'s tech stack includes html5media, WordPress, oEmbed, Google Fonts API, React, Yoast SEO, HSTS and HTTP/3.

What is Rare Disease Data Trust (RDDT)'s email format?

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Rare Disease Data Trust (RDDT)'s email format typically follows the pattern of FLast@finding-rare.com. Find more Rare Disease Data Trust (RDDT) email formats with LeadIQ.

How much funding has Rare Disease Data Trust (RDDT) raised to date?

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As of October 2026, Rare Disease Data Trust (RDDT) has raised $1.5M in funding. The last funding round occurred on Apr 30, 2024 for $751K.

When was Rare Disease Data Trust (RDDT) founded?

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Rare Disease Data Trust (RDDT) was founded in 2019.
Rare Disease Data Trust (RDDT) logo

Rare Disease Data Trust (RDDT)

Hospitals and Health CareTennessee, United States2-10 Employees

Rare Disease Data Trust, based in Nashville, Tennessee, operates in the hospitals and health care sector. It partners with community-based provider health organizations serving roughly 400,000 patient lives to commercialize their de-identified health data for compliant, commercially sponsored searches by bio-pharma sponsors seeking undiagnosed patients with rare and ultra-rare diseases. The goal is to reduce the diagnostic odyssey experienced by patients by enabling targeted data-driven outreach while preserving privacy.

Its primary customers are the community-based providers supplying the data and the bio-pharma entities funding the searches. The organization is a small team focused on facilitating compliant data-sharing partnerships within health care.

Section iconCompany Overview

NAICS Code
62 - Health Care and Social Assistance
Founded
2019
Employees
2-10

Section iconFunding & Financials

  • $1.5M

    Rare Disease Data Trust (RDDT) has raised a total of $1.5M of funding over 6 rounds. Their latest funding round was raised on Apr 30, 2024 in the amount of $751K as a Seed.

  • $1M - $10M

    Rare Disease Data Trust (RDDT)'s revenue is estimated to be in the range of $1M - $10M

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