Insights

Fundraising Potential The organization operates with substantial revenue (10M-25M) and a focus on fundraising activities including events such as the Clint Hurdle Hot Stove Dinner and national advocacy programs, signaling strong budget capacity for partner-sponsored campaigns, grants, and cause-marketing opportunities.

Advocacy & Policy Recent initiatives include launching an Advocacy Ambassador Program and broad policy advocacy efforts, indicating a readiness to collaborate with partners on awareness campaigns, legislative outreach, and policy-focused sponsorships.

Global Collaboration Active international alignment with IPWSO and FPWR for joint conferences demonstrates openness to co-hosted events, international partnerships, and cross-sell opportunities with allied organizations and research entities.

Community Engagement A mission centered on families and professionals with education, support, and awareness programs suggests opportunities for tech, education, and service partners to provide platforms, training tools, or content partnerships that directly reach affected communities.

Technology & Reach Tech stack includes WordPress-based tools, media and analytics integrations, and content management capabilities, indicating potential for digital solutions, CRM enhancements, donor analytics, event tech, and targeted digital marketing collaborations.

Similar companies to Prader-Willi Syndrome Association | USA

Prader-Willi Syndrome Association | USA Tech Stack

Prader-Willi Syndrome Association | USA uses 8 technology products and services including WP Rocket, Element UI, Really Simple Discovery, and more. Explore Prader-Willi Syndrome Association | USA's tech stack below.

  • WP Rocket
    Caching
  • Element UI
    Javascript Frameworks
  • Really Simple Discovery
    Miscellaneous
  • TinyMCE
    Rich Text Editors
  • reCAPTCHA
    Security
  • Google Tag Manager
    Tag Management
  • YouTube
    Video Players
  • Google Analytics
    Web Analytics

Media & News

Prader-Willi Syndrome Association | USA's Email Address Formats

Prader-Willi Syndrome Association | USA uses at least 1 format(s):
Prader-Willi Syndrome Association | USA Email FormatsExamplePercentage
FLast@pwsausa.orgJDoe@pwsausa.org
88%
Last_First@pwsausa.orgDoe_John@pwsausa.org
8%
First.Last@pwsausa.orgJohn.Doe@pwsausa.org
4%

Frequently Asked Questions

What is Prader-Willi Syndrome Association | USA's phone number?

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You can contact Prader-Willi Syndrome Association | USA's main corporate office by phone at . For more prospecting data, LeadIQ has access to up-to-date and accurate contact information within our platform. Find, capture, and sync contact data to your CRM and sales tools in one click.

What is Prader-Willi Syndrome Association | USA's official website and social media links?

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Prader-Willi Syndrome Association | USA's official website is pwsausa.org and has social profiles on LinkedIn.

How much revenue does Prader-Willi Syndrome Association | USA generate?

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As of August 2026, Prader-Willi Syndrome Association | USA's annual revenue is estimated to be $10M - $25M.

What is Prader-Willi Syndrome Association | USA's SIC code NAICS code?

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Prader-Willi Syndrome Association | USA's SIC code is 8399 - Social Services, Not Elsewhere Classified NAICS code is 813 - Religious, Grantmaking, Civic, Professional, and Similar Organizations.

How many employees does Prader-Willi Syndrome Association | USA have currently?

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As of August 2026, Prader-Willi Syndrome Association | USA has approximately 34 employees across 2 continents, including North AmericaEurope. Key team members include Chief Executive Officer: M. R.Director Of Community Engagement: D. L.Executive Director: J. H.. Explore Prader-Willi Syndrome Association | USA's employee directory with LeadIQ.

What industry does Prader-Willi Syndrome Association | USA belong to?

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Prader-Willi Syndrome Association | USA operates in the Non-profit Organizations industry.

What technology does Prader-Willi Syndrome Association | USA use?

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Prader-Willi Syndrome Association | USA's tech stack includes WP RocketElement UIReally Simple DiscoveryTinyMCEreCAPTCHAGoogle Tag ManagerYouTubeGoogle Analytics.

What is Prader-Willi Syndrome Association | USA's email format?

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Prader-Willi Syndrome Association | USA's email format typically follows the pattern of FLast@pwsausa.org. Find more Prader-Willi Syndrome Association | USA email formats with LeadIQ.
Prader-Willi Syndrome Association | USA logo

Prader-Willi Syndrome Association | USA

Non-profit OrganizationsFlorida, United States11-50 Employees

Prader-Willi Syndrome Association USA is a non-profit organization based in Brandon, Florida, with a workforce of 11-50 employees. It is an organization of families and professionals that works to raise awareness, provide support, deliver education and advocacy, and promote and fund research aimed at improving the quality of life for individuals affected by Prader-Willi syndrome. The organization maintains a website at pwsausa.org and engages in various initiatives and collaborations as part of its activities, including launching programs such as the Advocacy Ambassador Program in December 2025 and the Rare Aware Art Share project, as well as partnering with international organizations and participating in conferences. Historically, PWSA USA has organized events like the Clint Hurdle Hot Stove Dinner since 2015 and has participated in national and international events such as the United in Hope conference. The organization emphasizes community engagement and service through a network of families and professionals.

Section iconCompany Overview

Phone number
SIC Code
8399 - Social Services, Not Elsewhere Classified
NAICS Code
813 - Religious, Grantmaking, Civic, Professional, and Similar Organizations
Employees
11-50

Section iconFunding & Financials

  • $10M - $25M

    Prader-Willi Syndrome Association | USA's revenue is estimated to be in the range of $10M - $25M

Section iconFunding & Financials

  • $10M - $25M

    Prader-Willi Syndrome Association | USA's revenue is estimated to be in the range of $10M - $25M

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