What departments does National PKU Alliance have?

National PKU Alliance has employees across 4 departments including Research, Operations, Community & Social Services, Program & Project Management.

What is the largest department at National PKU Alliance?

The largest department at National PKU Alliance is Operations with 2 employees.

Where are National PKU Alliance employees located globally?

National PKU Alliance has employees across 1 continents and 1 countries including United States Of America.

How has National PKU Alliance's team size changed over time?

National PKU Alliance's team has remained stable from approximately 21 to 21 employees based on available data.

National PKU Alliance Employee Directory

Non-profit OrganizationsVirginia, United States11-50 Employees

The National PKU Alliance is a nonprofit organization that serves as a national voice for people affected by phenylketonuria (PKU), coordinating advocacy and support for the PKU community. Founded in 2008 by parents, grandparents, and individuals, it aims to elevate awareness and influence policies relevant to PKU care and resources. It operates within the nonprofit sector to connect patients, families, and clinicians with information and guidance on PKU management.

Based in Roanoke, Virginia, the organization is a small entity within the nonprofit sector that serves a national audience. A notable recent development occurred in April 2026 when it participated in Rare Disease Week and had representation on Capitol Hill to advocate for PKU-related issues.

National PKU Alliance Global Highlights

North America
25

United States Of America
25

National PKU Alliance's Leadership

D. M.
President
Mobile Phone
Email
E. J.
Director Of Research Development
Mobile Phone
Email
B. G.
Director Of Events
Mobile Phone
Email
S. G.
Director Of Development And Operations
Mobile Phone
Email
C. S.
Executive Director
Mobile Phone
Email
C. N. S.
Scientific Advisory Board Member
Mobile Phone
Email
A. S.
Board Member | Chair Governance & Nominations Committee
Mobile Phone
Email
B. A.
Scientific Advisory Board Member (volunteer Service)
Mobile Phone
Email

National PKU Alliance Employee Metrics

100%

50%

0%

2026

2025

Business
Entrepreneurship
Program & Project Management
Accounting
Administrative
Other
Consultant
Business Development

Contact profiles from National PKU Alliance

Name

Title

Contact Info

Location

Last Update

D. M.
President
Mobile Phone
Email
UNITED STATES
Dec 30, 2023
E. J.
Director Of Research Development
Mobile Phone
Email
United States
Jun 30, 2026
B. G.
Director Of Events
Mobile Phone
Email
United StatesDistrict of Columbia
Jun 28, 2026
S. G.
Director Of Development And Operations
Mobile Phone
Email
United StatesKansas
Jun 28, 2026
C. S.
Executive Director
Mobile Phone
Email
UNITED STATES
Oct 17, 2024
C. N. S.
Scientific Advisory Board Member
Mobile Phone
Email
United StatesMassachusetts
Apr 14, 2026
A. S.
Board Member | Chair Governance & Nominations Committee
Mobile Phone
Email
United StatesMassachusetts
Apr 07, 2026
B. A.
Scientific Advisory Board Member (volunteer Service)
Mobile Phone
Email
United StatesMassachusetts
Apr 16, 2026
D. L.
Board Member
Mobile Phone
Email
United StatesMassachusetts
Jun 28, 2026
M. R.
Mentor
Mobile Phone
Email
United StatesMassachusetts
Jun 29, 2026

Frequently Asked Questions

What is National PKU Alliance known for?

National PKU Alliance was founded in 2008 operates in the Non-profit Organizations industry. The company's main headquarters is located in 2014 Electric Road 212 Roanoke, Virginia United States; you can contact the main corporate office by phone at

+1-715-495-****

. Explore National PKU Alliance's company overview page for more information.

What is National PKU Alliance's most common email format?

National PKU Alliance employees' email format typically follows the pattern of . Trying to find reliable and up-to-date employee contact data? Find more National PKU Alliance email formats with LeadIQ.

How many employees does National PKU Alliance have currently?

National PKU Alliance has approximately 22 employees as of June 2026. These team members are located across 1 continents, including North America.

Who are National PKU Alliance's key employees and leadership?

As of June 2026, National PKU Alliance's key employees include:

President: D. M.
Director Of Research Development: E. J.
Director Of Events: B. G.
Director Of Development And Operations: S. G.
Executive Director: C. S.

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National PKU Alliance Employee Directory

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