FSHD Society Employee Directory

Q: What is FSHD Society known for?

FSHD Society was founded in 1991. FSHD Society operates in the Philanthropic Fundraising Services industry.

Q: How many employees does FSHD Society have currently?

FSHD Society has approximately 51 employees.

Q: Who are FSHD Society's key employees and leadership?

FSHD Society's key employees include: President & Chief Executive Officer: M. S., Chief Operating Officer: K. K., Chief Scientific Officer: L. R., Chief Community Engagement Officer: B. J., Chief Financial Officer: A. M..

Philanthropic Fundraising ServicesMassachusetts, United States51-200 Employees

The FSHD Society is the world’s largest research-focused patient organization for facioscapulohumeral muscular dystrophy (FSHD), one of the most prevalent forms of muscular dystrophy. We have catalyzed major advancements and are accelerating the development of treatments and a cure to end the pain, disability, and suffering endured by one million people worldwide who live with FSHD. The FSHD Society has transformed the landscape for FSHD research, and is committed to making sure that no one faces this disease alone.

Our Vision: A world free of the suffering caused by Facioscapulohumeral Muscular Dystrophy (FSHD)
 
Our Mission: Find treatments and a cure for FSHD while empowering our families
 
Our Strategies:
- Accelerate the development of treatments and a cure for FSHD
- Increase, engage, and empower our stakeholders
- Aggressively leverage and expand resources to support our Mission
 
Our Core Values: Research | Community | Urgency

Find FSHD Society employees' phone numbers or email addresses

FSHD Society Global Highlights

North America
45

United States Of America
45

Asia
3

India
2
Philippines
1

Europe
2

Netherlands
2

Oceania
1

Australia
1

FSHD Society's Leadership

K. K.
Chief Operating Officer
Mobile Phone
Email
L. R.
Chief Scientific Officer
Mobile Phone
Email
B. J.
Chief Community Engagement Officer
Mobile Phone
Email
A. M.
Chief Financial Officer
Mobile Phone
Email
A. G.
Chief Programs Officer
Mobile Phone
Email
C. L.
Chief Development Officer
Mobile Phone
Email
R. W.
Chief Psychologist
Mobile Phone
Email
M. S.
President & Chief Executive Officer
Mobile Phone
Email

Contact profiles from FSHD Society

Name

Title

Contact Info

Location

Last Update

A. F.
Director Of Education
Mobile Phone
Email
United States
Nov 11, 2025
J. G.
National Director, Chapter Programs (operations)
Mobile Phone
Email
United StatesWisconsin
Nov 11, 2025
E. S.
Marketing Director
Mobile Phone
Email
United States
Nov 11, 2025
M. C.
Western Pa Chapter Director
Mobile Phone
Email
Nov 11, 2025
K. N. G.
Director Of Operations
Mobile Phone
Email
United StatesMassachusetts
Nov 11, 2025
H. R.
Director Of Development
Mobile Phone
Email
United StatesNew Hampshire
Mar 18, 2025
D. W.
Office Manager/Patient Liaison
Mobile Phone
Email
United StatesMassachusetts
Nov 11, 2025
K. S.
Manager Of Fundraise Your Way And Special Events
Mobile Phone
Email
United StatesMassachusetts
Nov 11, 2025
J. F.
Operations Manager
Mobile Phone
Email
Feb 03, 2025
D. W.
Office Manager/Gift Officer
Mobile Phone
Email
United StatesMassachusetts
Nov 10, 2025

Frequently Asked Questions

What is FSHD Society known for?

FSHD Society was founded in 1991 operates in the Philanthropic Fundraising Services industry. The company's main headquarters is located in 450 Bedford St. Lexington, Massachusetts 02420 United States; you can contact the main corporate office by phone at

+1-781-301-****

. Explore FSHD Society's company overview page for more information.

What is FSHD Society's most common email format?

FSHD Society employees' email format typically follows the pattern of . Trying to find reliable and up-to-date employee contact data? Find more FSHD Society email formats with LeadIQ.

How many employees does FSHD Society have currently?

FSHD Society has approximately 51 employees as of October 2025. These team members are located across 4 continents, including North AmericaAsiaEurope.

Who are FSHD Society's key employees and leadership?

As of October 2025, FSHD Society's key employees include:

Chief Operating Officer: K. K.
Chief Scientific Officer: L. R.
Chief Community Engagement Officer: B. J.
Chief Financial Officer: A. M.
Chief Programs Officer: A. G.

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