Insights

Grant-driven growth Strong grant funding and a recent $4.9M CIRM grant signal robust project pipelines and potential for funded collaborations. Sales opportunities exist in partnering with FRF for therapeutic development services, contracted research, and grant-aligned programs that align with funder expectations.

Leadership expansion New Chief Medical Officer appointed in 2026 and prior Chief Scientific Officer in 2023 indicate a shift toward clinical translation and drug development maturity. This presents openings for strategic collaborations in clinical trial design, regulatory strategy, and translational research services.

Industry partnerships Recent collaboration with Charles River Laboratories reinforces FRF’s trajectory toward industry-backed gene therapy development. Prospects exist for co-development, manufacturing support, preclinical services, and access to CRO/CMO networks to accelerate timelines.

Impact-driven outreach As a patient-focused nonprofit with a track record of funding multiple projects and ambitious timelines to human trials, FRF can be a gateway for services in patient advocacy alignment, real-world data collection, and market access strategies to support therapy rollout.

Global funding signals Diverse funding stature (nonprofit revenue in the million-dollar range, active fundraising, and international donor support) suggests a readiness for scalable, value-driven partnerships in research platforms, data analytics, and technology deployments that enhance grant efficiency and outcomes tracking.

Similar companies to FOXG1 Research Foundation

FOXG1 Research Foundation Tech Stack

FOXG1 Research Foundation uses 8 technology products and services including iCIMS, Amazon Web Services, Squarespace, and more. Explore FOXG1 Research Foundation's tech stack below.

Media & News

FOXG1 Research Foundation's Email Address Formats

FOXG1 Research Foundation uses at least 2 email formats:
FOXG1 Research Foundation Email FormatsExamplePercentage
First@foxg1research.orgJohn@foxg1research.org
82%
First.Last@foxg1research.orgJohn.Doe@foxg1research.org
18%

Frequently Asked Questions

What is FOXG1 Research Foundation's official website and social media links?

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FOXG1 Research Foundation's official website is foxg1research.org and has social profiles on LinkedIn.

How much revenue does FOXG1 Research Foundation generate?

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As of September 2026, FOXG1 Research Foundation's annual revenue is estimated to be $1M - $10M.

What is FOXG1 Research Foundation's NAICS code?

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FOXG1 Research Foundation's NAICS code is 5417 - Scientific Research and Development Services.

How many employees does FOXG1 Research Foundation have currently?

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As of September 2026, FOXG1 Research Foundation has approximately 23 employees across 3 continents, including North America, Oceania and Europe. Key team members include Chief Executive Officer - Australia: S. H., Non Executive Director And Treasurer - Australia: D. C. and Scientific Advisory Board Member: K. E. M. Explore FOXG1 Research Foundation's employee directory with LeadIQ.

What industry does FOXG1 Research Foundation belong to?

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FOXG1 Research Foundation operates in the Research Services industry.

What technology does FOXG1 Research Foundation use?

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FOXG1 Research Foundation's tech stack includes iCIMS, Amazon Web Services, Squarespace, Squarespace Commerce, Google Workspace, AfterPay, Piwik PRO Core and Facebook Widget.

What is FOXG1 Research Foundation's email format?

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FOXG1 Research Foundation's email format typically follows the pattern of First@foxg1research.org. Find more FOXG1 Research Foundation email formats with LeadIQ.

When was FOXG1 Research Foundation founded?

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FOXG1 Research Foundation was founded in 2017.
FOXG1 Research Foundation logo

FOXG1 Research Foundation

Research ServicesNew York, United States11-50 Employees

The FOXG1 Research Foundation (FRF) is a US-based nonprofit organization focused on accelerating research into FOXG1 syndrome, a severe developmental brain disorder. Founded in 2017 by affected families, FRF supports scientific work aimed at pursuing disease-modifying therapies and preparing for human clinical trials within a few years, with active collaboration among researchers, clinicians, and patient communities. Based in Port Washington, New York, the organization operates in the research services sector and has a mission centered on advancing understanding and treatment options for FOXG1 syndrome and related brain disorders. Recent activities include strategic program development and partnerships intended to move gene therapy and other therapeutic approaches toward clinical evaluation, reflecting FRF’s role as a patient-led driver within the broader rare disease and neuroscience landscape.

Section iconCompany Overview

NAICS Code
5417 - Scientific Research and Development Services
Founded
2017
Employees
11-50

Section iconFunding & Financials

  • $1M - $10M

    FOXG1 Research Foundation's revenue is estimated to be in the range of $1M - $10M

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