Foundation for Ichthyosis & Related Skin Types, Inc. (FIRST)
Non-profit OrganizationsPennsylvania, United States11-50 Employees
The Foundation for Ichthyosis & Related Skin Types, Inc. (FIRST) is a non-profit organization based in Lansdale, Pennsylvania, dedicated to improving lives and pursuing cures for individuals affected by ichthyosis and related skin conditions. Its work centers on providing reliable information, support, and education to patients, families, and medical professionals, aiming to meet medical, social, and educational needs while fostering a sense of community through newsletters, regional networks, and conferences. FIRST funds biomedical research to advance understanding and treatment of ichthyosis, having supported a notable research program since 2006 with grants directed toward potential cures, new therapies, and opportunities for young investigators. The organization operates within the non-profit sector, serving a community with a focus on ichthyosis, and emphasizes trustworthy, ethical conduct in its information sharing and activities.