EveryLife Foundation for Rare Diseases Employee Directory

Q: What is EveryLife Foundation for Rare Diseases known for?

EveryLife Foundation for Rare Diseases was founded in 2009. EveryLife Foundation for Rare Diseases operates in the Public Policy Offices industry.

Public Policy OfficesDistrict of Columbia, United States51-200 Employees

The EveryLife Foundation for Rare Diseases is powered by the rare disease community to improve health outcomes by driving change through evidence-based policy, leading science-driven policy and regulatory research, activating the community to advocate for their rights and needs, and strengthening the rare disease community.

Find EveryLife Foundation for Rare Diseases employees' phone numbers or email addresses

EveryLife Foundation for Rare Diseases Global Highlights

North America
85

United States Of America
84
Canada
1

Europe
3

United Kingdom Of Great Britain And Northern Ireland
1
Switzerland
1
Austria
1

EveryLife Foundation for Rare Diseases's Leadership

M. P.
Chief Executive Officer
Mobile Phone
Email
A. K.
Chief Mission Officer
Mobile Phone
Email
W. N.
Chief Marketing & Communications Officer
Mobile Phone
Email
C. K.
Chief Development Officer
Mobile Phone
Email
J. U.
Vice President Of Individual Giving
Mobile Phone
Email
T. B.
Vice President Of Alliance Development
Mobile Phone
Email
S. V. F.
Vice President Of Advocacy
Mobile Phone
Email
A. T.
Vice President Of Operations And Events
Mobile Phone
Email

EveryLife Foundation for Rare Diseases Employee Metrics

100%

50%

2026

2025

Consultant
Community & Social Services
Entrepreneurship
Branding
Business
Other

Contact profiles from EveryLife Foundation for Rare Diseases

Name

Title

Contact Info

Location

Last Update

A. K.
Chief Mission Officer
Mobile Phone
Email
United StatesDistrict of Columbia
Feb 20, 2026
M. P.
Chief Executive Officer
Mobile Phone
Email
United StatesNew York
Feb 20, 2026
W. N.
Chief Marketing & Communications Officer
Mobile Phone
Email
United StatesNew Jersey
Feb 27, 2026
C. K.
Chief Development Officer
Mobile Phone
Email
United StatesVirginia
Feb 27, 2026
B. L.
Owner
Mobile Phone
Email
UNITED STATES
Jul 08, 2024
J. S.
Senior Vice President Of Policy And Advocacy
Mobile Phone
Email
United StatesDistrict of Columbia
Feb 20, 2026
J. U.
Vice President Of Individual Giving
Mobile Phone
Email
United StatesMontana
Feb 20, 2026
T. B.
Vice President Of Alliance Development
Mobile Phone
Email
United StatesDistrict of Columbia
Mar 05, 2026
S. V. F.
Vice President Of Advocacy
Mobile Phone
Email
Feb 20, 2026
A. T.
Vice President Of Operations And Events
Mobile Phone
Email
United StatesDistrict of Columbia
Feb 20, 2026

Frequently Asked Questions

What is EveryLife Foundation for Rare Diseases known for?

EveryLife Foundation for Rare Diseases was founded in 2009 operates in the Public Policy Offices industry. The company's main headquarters is located in 1012 14th Street Northwest Suite 500 Washington, District of Columbia 20005 United States; you can contact the main corporate office by phone at

+1-415-884-****

. Explore EveryLife Foundation for Rare Diseases's company overview page for more information.

What is EveryLife Foundation for Rare Diseases's most common email format?

EveryLife Foundation for Rare Diseases employees' email format typically follows the pattern of . Trying to find reliable and up-to-date employee contact data? Find more EveryLife Foundation for Rare Diseases email formats with LeadIQ.

How many employees does EveryLife Foundation for Rare Diseases have currently?

EveryLife Foundation for Rare Diseases has approximately 78 employees as of March 2026. These team members are located across 2 continents, including North AmericaEurope.

Who are EveryLife Foundation for Rare Diseases's key employees and leadership?

As of March 2026, EveryLife Foundation for Rare Diseases's key employees include:

Chief Executive Officer: M. P.
Chief Mission Officer: A. K.
Chief Marketing & Communications Officer: W. N.
Chief Development Officer: C. K.
Vice President Of Individual Giving: J. U.

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