Cystinosis Research Foundation Employee Directory
Research ServicesCalifornia, United States2-10 Employees
The Cystinosis Research Foundation is a small organization in Irvine, California, dedicated to advancing cystinosis research across both laboratory and clinical settings to expand treatment options and pursue a cure. It runs a bi-annual program to identify and support research projects, with the aim of accelerating progress and focusing on novel therapies. The foundation also seeks to educate the public and the medical community about cystinosis to promote early diagnosis and appropriate treatment. Operating with a small team, the foundation concentrates its activities in the field of cystinosis research. In September 2019, Global Genes recognized the organization as a Rare Champion of Hope for research and treatment.