Insights

Fundraising Momentum The foundation recently secured $3.5M in expanded access-directed funding, signaling strong fundraising capability and potential for scalable donor engagement initiatives or technology-enabled grant programs.

Research Funding Focus As an organization dedicated to funding research toward a cure or treatment for Sanfilippo syndrome, there is a clear opportunity to propose research partnerships, clinical data collaborations, and rare-disease study services.

Small to Mid-Size With 11-50 employees and revenue in the 1M–10M range, targeted outreach can emphasize cost-effective partnerships, grant-management tools, and donor CRM solutions aligned to mid-sized non-profit operations.

Digital Presence Active online presence and a WordPress-based tech stack indicate readiness for website enhancements, digital fundraising campaigns, analytics tracking, and content marketing services to boost engagement.

Strategic Partnerships Past collaboration with RDMD and a focus on rare diseases suggest openness to alliance-based programs, data-sharing initiatives, and co-funded research ventures with industry partners.

Similar companies to Cure Sanfilippo Foundation

Cure Sanfilippo Foundation Tech Stack

Cure Sanfilippo Foundation uses 8 technology products and services including Matomo, Shopify, WooCommerce, and more. Explore Cure Sanfilippo Foundation's tech stack below.

Cure Sanfilippo Foundation's Email Address Formats

Cure Sanfilippo Foundation uses at least 1 email format:
Cure Sanfilippo Foundation Email FormatsExamplePercentage
First@curesanfilippofoundation.orgJohn@curesanfilippofoundation.org
100%

Frequently Asked Questions

What is Cure Sanfilippo Foundation's official website and social media links?

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Cure Sanfilippo Foundation's official website is curesanfilippofoundation.org and has social profiles on LinkedIn.

How much revenue does Cure Sanfilippo Foundation generate?

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As of August 2026, Cure Sanfilippo Foundation's annual revenue is estimated to be $1M - $10M.

What is Cure Sanfilippo Foundation's NAICS code?

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Cure Sanfilippo Foundation's NAICS code is 813 - Religious, Grantmaking, Civic, Professional, and Similar Organizations.

How many employees does Cure Sanfilippo Foundation have currently?

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As of August 2026, Cure Sanfilippo Foundation has approximately 12 employees across 1 continents, including North America. Key team members include Chief Science Officer: C. O., President: G. O. and Board Member: B. V. W. Explore Cure Sanfilippo Foundation's employee directory with LeadIQ.

What industry does Cure Sanfilippo Foundation belong to?

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Cure Sanfilippo Foundation operates in the Non-profit Organizations industry.

What technology does Cure Sanfilippo Foundation use?

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Cure Sanfilippo Foundation's tech stack includes Matomo, Shopify, WooCommerce, Google Workspace, Google Cloud, Stripe, WP Engine and Piwik PRO Core.

What is Cure Sanfilippo Foundation's email format?

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Cure Sanfilippo Foundation's email format typically follows the pattern of First@curesanfilippofoundation.org. Find more Cure Sanfilippo Foundation email formats with LeadIQ.

When was Cure Sanfilippo Foundation founded?

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Cure Sanfilippo Foundation was founded in 2013.
Cure Sanfilippo Foundation logo

Cure Sanfilippo Foundation

Non-profit OrganizationsSouth Carolina, United States11-50 Employees

Cure Sanfilippo Foundation is a small nonprofit based in Columbia, South Carolina, focusing on advocacy and funding research toward a cure or effective treatments for Sanfilippo Syndrome in children. It serves families affected by the condition and researchers pursuing therapies, aiming to address the absence of approved treatments for a rapidly degenerative, fatal disease.

Operating in the nonprofit sector of rare diseases, it positions itself at the intersection of patient advocacy and scientific funding. A notable development in its activities is a partnership formed in 2020 with RDMD to advance Sanfilippo research. The foundation concentrates on supporting research translation and policy advocacy to help move potential therapies toward clinical use.

Section iconCompany Overview

NAICS Code
813 - Religious, Grantmaking, Civic, Professional, and Similar Organizations
Founded
2013
Employees
11-50

Section iconFunding & Financials

  • $1M - $10M

    Cure Sanfilippo Foundation's revenue is estimated to be in the range of $1M - $10M

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