Insights

Partnership Opportunity Strategic collaboration potential with other rare disease organizations and research funders is evident from recent partnership announcements, suggesting openness to joint programs, fundraising campaigns, and shared grant applications.

Fundraising Growth Revenue range indicates active fundraising and program support; target expansion through grant sourcing, corporate sponsorships, and donor campaigns aligned with rare disease research and patient education.

Grants & Grants Recent $800K grant from the Chan Zuckerberg Initiative underscores eligibility for large, mission-aligned grants; leverage success in grant procurement to pursue additional multi-year funding and impact-driven programs.

Tech Enablement Cloud and analytics stack including AWS, Datadog, Hotjar, and Intercom, offering opportunities to propose digital engagement enhancements, data dashboards for impact reporting, and donor/volunteer experience improvements.

Clinical & Education Outreach Recent program launches in arrhythmia and treatment education signal a buyer interest in medical education platforms, tele-education, and patient/clinician training modules that can be scaled with secure content delivery.

Similar companies to Barth Syndrome Foundation

Barth Syndrome Foundation Tech Stack

Barth Syndrome Foundation uses 8 technology products and services including Hotjar, Microsoft Clarity, Amazon Web Services, and more. Explore Barth Syndrome Foundation's tech stack below.

Barth Syndrome Foundation's Email Address Formats

Barth Syndrome Foundation uses at least 2 email formats:
Barth Syndrome Foundation Email FormatsExamplePercentage
First.Last@barthsyndrome.orgJohn.Doe@barthsyndrome.org
80%
FLast@barthsyndrome.orgJDoe@barthsyndrome.org
20%

Frequently Asked Questions

What is Barth Syndrome Foundation's phone number?

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You can contact Barth Syndrome Foundation's main corporate office by phone at . For more prospecting data, LeadIQ has access to up-to-date and accurate contact information within our platform. Find, capture, and sync contact data to your CRM and sales tools in one click.

What is Barth Syndrome Foundation's official website and social media links?

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Barth Syndrome Foundation's official website is barthsyndrome.org and has social profiles on LinkedIn.

How much revenue does Barth Syndrome Foundation generate?

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As of September 2026, Barth Syndrome Foundation's annual revenue is estimated to be $1M - $10M.

What is Barth Syndrome Foundation's SIC code and NAICS code?

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Barth Syndrome Foundation's SIC code is 6732 - Educational, Religious, and Charitable Trusts and NAICS code is 813 - Religious, Grantmaking, Civic, Professional, and Similar Organizations.

How many employees does Barth Syndrome Foundation have currently?

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As of September 2026, Barth Syndrome Foundation has approximately 15 employees across 2 continents, including North America and Europe. Key team members include Chief Scientific Officer: L. M., Board Of Directors: K. W. and Chairman: S. M. Explore Barth Syndrome Foundation's employee directory with LeadIQ.

What industry does Barth Syndrome Foundation belong to?

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Barth Syndrome Foundation operates in the Non-profit Organizations industry.

What technology does Barth Syndrome Foundation use?

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Barth Syndrome Foundation's tech stack includes Hotjar, Microsoft Clarity, Amazon Web Services, Microsoft 365, Intercom, Trustpilot, Datadog and Vimeo.

What is Barth Syndrome Foundation's email format?

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Barth Syndrome Foundation's email format typically follows the pattern of First.Last@barthsyndrome.org. Find more Barth Syndrome Foundation email formats with LeadIQ.

When was Barth Syndrome Foundation founded?

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Barth Syndrome Foundation was founded in 2000.
Barth Syndrome Foundation logo

Barth Syndrome Foundation

Non-profit OrganizationsMassachusetts, United States11-50 Employees

The Barth Syndrome Foundation is a nonprofit organization based in Cambridge, Massachusetts. It is the world's only volunteer-led organization dedicated to saving lives through education, advances in treatment, and finding a cure for Barth syndrome. The foundation's activities center on educational initiatives and efforts to advance research related to Barth syndrome.

In August 2023, the organization announced the launch of the Barth Syndrome Arrhythmia Project. Earlier, in 2019, it announced the appointment of a Chief Science Officer. The foundation operates as a small to mid-sized nonprofit based in Cambridge.

Section iconCompany Overview

Phone number
SIC Code
6732 - Educational, Religious, and Charitable Trusts
NAICS Code
813 - Religious, Grantmaking, Civic, Professional, and Similar Organizations
Founded
2000
Employees
11-50

Section iconFunding & Financials

  • $1M - $10M

    Barth Syndrome Foundation's revenue is estimated to be in the range of $1M - $10M

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