Action Duchenne Employee Directory
FundraisingEngland, United Kingdom11-50 Employees
Action Duchenne is a small to mid-sized charity based in Bristol, England, focused on Duchenne muscular dystrophy (DMD), a rare genetic condition that causes progressive muscle weakness beginning in early childhood. It operates in fundraising and supports activities spanning research funding, family services, and science education programs related to DMD. Its work is aimed at people living with DMD and their families, along with researchers and educators who collaborate on the condition. A notable recent development is the appointment of Marion Main, a physiotherapist and Duchenne expert, to Action Duchenne's webinar series in February 2024. In December 2023 the charity launched its All-through Support programme, described as the first of its kind for Duchenne muscular dystrophy.