The Sturge-Weber Foundation Email Format

Individual and Family ServicesColorado, United States2-10 Employees

The Sturge-Weber Foundation is a nonprofit organization in the Individual and Family Services sector, based in Aurora, Colorado. Founded in 1987 by Kirk and Karen Ball, the foundation supports people affected by Sturge-Weber syndrome and related vascular birthmark conditions through a combination of phone support, family networking, education, physician referral services, medical education programs, and research endeavors. Its mission focuses on improving quality of life and care via collaborative education, advocacy, research, and patient-friendly support, serving a global membership with activities funded by donations, grants, and fundraising efforts. In recent years the organization has pursued partnerships and collaborations with medical institutions and industry partners to expand access to treatment and information for those living with port-wine birthmarks and associated health concerns. The foundation maintains a small operational footprint and emphasizes ongoing community engagement and medical education as core components of its work.

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