Mowat-Wilson Syndrome Foundation Employee Directory

Non-profit OrganizationsNevada, United States2-10 Employees

The Mowat-Wilson Syndrome Foundation is a small nonprofit organization based in Las Vegas, Nevada, founded in 2013 to support people affected by Mowat-Wilson Syndrome. Its activities focus on providing family support, raising awareness, and backing research and education related to the condition. Mowat-Wilson Syndrome is a rare genetic disorder caused by mutations or deletions in the ZEB2 gene and is associated with cognitive impairment and multiple health challenges.

The foundation maintains data initiatives for the MWS community, including a patient registry launched in 2016 and a Matrix patient tracking platform introduced in 2022. It also conducts awareness and fundraising efforts through events such as Ride for Bella and the Ultra-Niagara 500, and has partnered with organizations like One World Strong and suAzio to engage caregivers and supporters.

Sign up for free to view info

Company overview Email format