Moebius Syndrome Foundation Employee Directory

Non-profit OrganizationsColorado, United States11-50 Employees

The Moebius Syndrome Foundation is a national nonprofit organization based in Denver, Colorado, established in 1994. It provides information and support to individuals with Moebius syndrome and their families, and works to increase awareness and understanding of the condition. It also advocates for scientific research aimed at improving the diagnosis and treatment of Moebius syndrome and related conditions.

In October 2025, the foundation announced a collaboration with the National Organization for Rare Disorders to plan and develop a study focused on Moebius syndrome. This partnership demonstrates the organization's ongoing engagement with the broader rare-disease research community to advance knowledge about the condition.

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