International Federation for Spina Bifida and Hydrocephalus Email Format

Non-profit OrganizationsBrussels, Belgium11-50 Employees

The International Federation for Spina Bifida and Hydrocephalus (IF) functions as the global umbrella organization for Spina Bifida and Hydrocephalus groups, coordinating a worldwide network of member associations. Its mission centers on improving the quality of life for people affected by Spina Bifida and/or Hydrocephalus and their families, while also pursuing primary prevention to reduce the incidence of neural tube defects and Hydrocephalus. The organization emphasizes knowledge sharing and connection-building among parents, individuals with these conditions, carers, and professionals to foster informed participation in decision making and access to up-to-date information. Based in Brussels, Belgium, IF operates through a global knowledge network and supports collaboration across its member associations.

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