Families for HoPE, Inc. Email Format

Individual and Family ServicesIndiana, United States2-10 Employees

Families for HoPE, Inc. is a nonprofit organization serving families and individuals affected by holoprosencephaly (HPE), a brain malformation with historically limited expectations for affected fetuses and children. The group provides education, peer support, and bereavement resources to help families navigate all phases of an HPE journey, from prenatal diagnoses through childhood and loss. Its programs include biennial family conferences, an online support group, a parent-to-parent network, bereavement support, and the distribution of educational materials to raise awareness about HPE and related issues.

Based in Indianapolis, Indiana, the organization operates within the individual and family services sector, aiming to expand understanding of HPE and enable children to reach their potential without assumed limits. It supports a community of thousands through its online group and related services, and has pursued partnerships and initiatives over the years, including the development of caregiving resources and outreach efforts to raise public awareness.

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